We at Aphasia Hope Foundation connected with Darryl and Mary Moulder shortly after Darryl, at the young age of 39, had a massive stroke.

Darryl W. Moulder was born in Jackson, Mississippi. He was raised in Greenville, Mississippi (among many places) as the oldest of three sons. He completed high school at Riverside High School and went on to become a paramedic and Training Chief at the Greenville Fire Department. He worked for 22 years at The Greenville Fire Department. The priority in Darryl’s life is and was serving the Lord and being an amazing husband and father. Darryl also enjoys riding his motorcycle with friends, playing the drums, paintball, wakeboarding, and traveling.

We asked Mary and Darryl to write about their experiences in an intensive therapy program. Mary writes:

Our visit to The Aphasia Center in St. Petersburg, FL was much different than we had expected. After months and months of fundraising and brainstorming ways to raise the funds to attend the facility, a date was finally set. We made plans to have intensive speech therapy for four weeks at Steps Forward The Aphasia Center.

The majority of the first two or three days was the beginning evaluation. This is once when Darryl was questioning the process. Although the therapists knew Darryl was unable to complete many of the activities on the assessment, he had to go through each step. Then, therapy really began on Day 4. He received 4 hours of speech therapy a day and an hour lunch with other participants. The people at the facility were all different ages, lived in different places, and were at different stages of recovery; however, they were all affected by Aphasia. Darryl enjoyed being with others that face the same challenges as he encounters each day.

The therapy included all of the different techniques that we were introduced to during therapy at home (Thanks to Renee and Gail). There was just more hours of it during a day for consecutive days and there were a variety of therapists. Each afternoon, one therapist, Darryl, and I would sit down to discuss his “homework” for the evening. While there, I requested that each therapist write down a brief explanation of what each worked on that day so we could continue the therapy at home.

While at The Aphasia Center, Darryl worked with four therapists and Dr. Lori Toblin. He became open to the idea of using other forms of communication (ipad, communication book, picture dictionary) ; however, speech was practiced in conjunction with these every day. He also worked on problem solving ways to get his message across. This was a great way for him to practice. The therapists were friendly and professional. Kathy, the in-take coordinator, is a major asset to the facility because she knows what we are going through having attended the facility with her own husband, Mike. Darryl really enjoyed his time with Mike. Darryl increased his spoken vocabulary and continues to be open to using the other forms of communication.

I wish I could tell others that they knew a secret to “curing” Aphasia; however, we all know it is just a long, hard road to recovery. We each have to take a day at a time praying for the strength to do our best. Darryl and I do see improvements all the time and we will continue to work hard each day.

We would like to thank our friends and family because the trip would not have been possible without their help. We also would like to thank the therapists, staff, and participants at The Aphasia Center for making the process meaningful and showing our family so much kindness. A special thank s to Mrs. Judi Stratinger and Aphasia Hope Foundation for her words of guidance and help. It is always nice to have someone that has gone through what you are facing. Many people ask us if we feel like it was worth it to attend The Aphasia Center, and we answer yes. Darryl gained a lot from the experience.

To read more on Darryl’s background, Cllck here .

Forum Highlight

Have Questions? Ask our Professional Of The Month: CAROLE POMILIO, MA, CCC-SLP .

Question:

I am looking for therapist for my father who is suffering from Aphasia. He has not had a stroke or a head injury, it seems to be simply a result of aging. He would like to try Melodic Intonation Therapy but his current therapist is not familiar with it. He lives in Seattle. Mentally and physically he is very sharp, still skiing and cycling at 82, but slowly his ability to speak continues to deteriorate. Does anyone know of a therapist in the Seattle area who does melodic intonation therapy for aphasia? Is there a software program or DVD he could use.

Any advice would be helpful. He his still mentally and physically vibrant but his speech problems cause much frustration and hinder his social interactions.

Thank you

Our Professional Answers:

It’s wonderful that you are reaching out and getting more information about blood flow 7 ingredients for your father. He sounds like a great man! Melodic Intonation Therapy is a excellent method and is appropriate to use in combination with other techniques for a speech therapist working with someone with aphasia. You can locate other speech pathologists in the area several ways: http://www.asha.org is our national certification site and they have listings of therapists; local rehabilitation centers and hospital outpatient programs likely have therapists more familiar with traditional adult neurogenic techniques. Any SLP should consider the communication needs of the individual and, with deterioration of skills, look to set up systems that will compensate for the changes that are occuring. Evaluating for perserved skill areas is essential in making sure that other reliable communication systems are available to him when and if he needs them.
I would say, however, that the issue is not the technique but that without a stroke or brain injury, your father is experiencing aphasia and with that a continual deterioration of speech. Has he seen a neurologist or been tested by a neuropsychologist? There are many causes for aphasia and a physician should be presented with a timeline and history of the onset. For example, people can experience aphasia from a medication or other medical reason and there is a subset of progressive frontotemporal dementias that include aphasia, called PPA or Primary Progressive Aphasia. Neurological testing and imaging studies should be conducted to rule out a specific pathology or reason for the aphasia. There are excellent resources available and I’m happy to help however I can. Please write back with any further questions.
Maura English Silverman, MS, CCC/SLP

MORE QUESTIONS:

Question:

my husband is 55 he had stroke on sep 9 2011, he is aphasia diagnosis he said aaaa,ooooo, and that but i don’t know if he going back to speak i don’t know about aphasia, he is in a rehab center, he want to go back home, he is reciving only 3 days a week therapy , but i try talk to him everyday he answer but in not understand so is good idea if he came back home??????????? but i dont have resours to get information here im live in san jose california please help me!!!!!!
Jacqueline

Answer From our Professional of the Month,
Dr. Leonard LePointe:

Dear Jacqueline:

It is not easy to face all the decisions necessary to get help with a family member who has aphasia. The decision on discharge may have been made already at this time and is usually made based on medical stability and health issues. If your husband is now at home, it would be beneficial to get continued speech and language therapy for his aphasia. We can expect some recovery as time goes on, but therapy can certainly help. Here is some contact information for support groups and places for aphasia support in the San Jose area.

Good luck to you and I hope you find some help for your husband.

A Time To Talk
O’Connor Hospital, DePaul Room, 2105 Forest Ave, San Jose, CA, 95128

*Meets 2nd Wednesday of month, 3:00-5pm. Refreshments provided.

Contacts: Marianne Heidtmann, SLP; Craig Maloney, OT; and Gary Standridge, OT
Phone: (408) 947-2709 or (408) 947-2873
Website: http://www.psastroke.org (click on ”Support Groups”)

Stroke Classes at Santa Clara Medical Center
Santa Clara Valley Medical Center, Rehabilitation Center, Second Floor Rehab Day Room, 751 S Bascom Ave, San Jose, CA 95128

*Mondays 6-7pm

Call (408) 885-5604 for more information.
Website: http://www.psastroke.org (click on ”Support Groups”)

Stroke Support Group at The Regional Medical Center
Regional Medical Center, Peppertree Auditorium, 225 N Jackson Ave, San Jose, CA 95116

*Meets 1st Monday of the month at 11am. 2008 Dates: March 3rd, April 7th, May 5th, June 2nd

Contacts: PT, OT, SLP staff and social workers.
Phone(s): (888) 762-8881 – Eng/Spanish Speakers; (888) 762-8811 (Vietnamese Speakers)

MORE QUESTIONS AND ANSWERS:

Question:

My grandmother had a stroke six weeks ago. She was diagnosed with Apahsia and Dysphasia so it is very difficult to communicate with her. She lives alone in the UK, unfortunately all of her family is in the USA.
I wanted to know if you have any ideas of entertainment for someone with these communication problems. She has no TV or computer access. She used to like crosswords, but obviously she can no longer do those. She does recognize some visual cues, like our names and faces from photos.
Any advice you have on this matter would be greatly appreciated.

Answer:

Dear Seslyn,
I am sure you and your family are very frustrated with the inability to communicate with your grandmother. I have a couple of suggestions. Most importantly is her attendance in some type of speech therapy so that she will continue to progress and improve on her current level of functioning. Also getting involved in a stroke support group would be very beneficial for your grandmother. You can access the stoke association in England using the address: stroke.org.uk. On this website you will find stroke support groups according to your location. If your grandmother has a neighbor, friend or church member that could take her to one of these groups she would find it extremely beneficial. Since you had mentioned that your grandmother liked to do crossword puzzles I thought you might find this information helpful. Another resource that this site lists is a shopping tab. This tab connects to the Amazon Company in the UK. If you look up puzzle books for stroke survivors you will find a variety of puzzle books that have been adapted for individuals with aphasia. I had purchased one in the past that I felt was interesting and adaptable for my patients with aphasia. It is still available through the Amazon site listed on the Stroke Association website but here is the order information if you like: The Puzzle Book Published by the Stroke Association CHSA House, Whitecross Street, London EC1Y 8JJ Tel# 0171 490 7999. The authors are: Valerie Eaton Griffith, Elizabeth Pepys and Sue Miller. I have personally met Ms. Griffith in the past, she was the caregiver of a stroke patient for many years so any information she publishes would be highly recommended. And although I realize that your grandmother does not have a computer if one of her friends could allow her access to their computer, she could use SKYPE to communicate or at least see all of her family in the US. Just seeing her family might brighten her spirits even though she might not be able to verbally communicate with them. Good Luck and I hope this helps!
Carole Pomilio M.S., CCC-SLP

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Questioin:

Dad’s Aphasia Hope Foundation < .b>
My dad is 58, and a neurologist recently diagnosed him with expressive aphasia. Without an MRI….We went ahead and paid for an MRI anyway. They say that there is nothing unusual about his results. I thought that aphasia is directly cause by some sort of brain damage….is this true? I’m not wanting to accept this diagnosis. I understand that ultimately….this is what he has…but I wonder if I should get a 3rd opinion. I also want to know about some therapy options for him. He lives near Great Bend, Kansas.
Thank you
Shannon

Our Professional of the Month answers:

Dear Shannon, it sounds like you have received some partial information, which just adds to the confusion and frustration you and your family may already be experiencing with a change in your father’s language skills. It is possible that an MRI would not ”pick up” the type of neurological insult your father experienced. There are multiple types of neurological changes that may result in expressive aphasia, as well. While having that type of diagnostic information would be helpful, the speech-language diagnosis of expressive aphasia is probably more useful because that is the issue with which you are dealing. A qualified speech-language pathologist would do a thorough speech-language-cognitive evaluation and assist your family in developing a rehabilitation plan (usually in conjunction with a neurologist or other health care provider). To find a qualified speech-language pathologist, you might start with recommendations from the neurologist’s office or contact local hospitals for outpatient clinics or therapists. Good luck and I hope your father has a speedy and thorough recovery. Anne

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Another forum highlight:
Questioin:

RIC Intensive aphasia therapy progam

My wife who is 47 suffered a major stroke 3 months ago amd was discharged from an acute rehab faculity a fews ago. Currently she going to a 5 day a week outpatient program. As a result of the stroke she has aphasia which makes it almost impossible to communicate.
I’ve been doing research and am considering try to get her into the intensive program at RIC in Chicago. I was wondering if you heard reviews regarding this program.
Paul

Our Professional of the Month answers:

Paul, I believe your wife is very fortunate to have you as her advocate. I genuinely believe that individuals with aphasia benefit greatly when their spouse/family are hopeful and motivated to provide the best care/treatment possible. With that said, research has indicated that individuals with aphasia have benefited from high dose intensive service programs. Rehab Institute of Chicago is recognized as a highly reputable program known for providing a comprehensive service for individuals with aphasia. The mission and vision of RIC has the best interest of the individual at the center. I think it’s critical that you contact a speech pathologist from RIC regarding the program content. You may learn more about the program by viewing their website. The contact information for RIC is: 312-238-6163. I also recommend talking with the neurologist and physiatrist. The neurologist and physiatrist will have recommendations with respect to your wife’s ability to tolerate the intensity at this time in her recovery. It’s important to know that if your wife is not up to the intensity at this time she may benefit in a few months or even a year or more down the road. The speech pathologist at RIC will be a great resource for you.
Paul, I’m sure you have been provided with more information than you can currently read; however I’d strongly recommend reading Jon Lyon’s book, Coping with Aphasia and Martha Taylor Sarno’s book, Understanding Aphasia for Family and friends. I have talked with family members that have found great strength in looking at this website and in looking at the resources of the National Aphasia Association.
Again, I believe your wife is very fortunate to have you caring for her. Take care,
Mary Beth Clark, MS/CCC

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Another forum highlight:

Question: My wife who is 47 suffered a major stroke 3 months ago amd was discharged from an acute rehab faculity a fews ago. Currently she going to a 5 day a week outpatient program. As a result of the stroke she has aphasia which makes it almost impossible to communicate.

Answer: Your wife is very fortunate to have you as an advocate during this challenging time. Without knowing your wife, and testing her language and cognitive skills, it would be difficult for me to recommend a specific speech and language intervention or program for her. What I can tell you is that intensive therapy has been shown to be quite beneficial for some individuals with aphasia and RIC has an excellent reputation. If you are considering this option, I’d highly recommend that you contact a speech-language pathologist at the facility and discuss the details (RIC’s Intensive Aphasia Therapy Program, 312-238-6163). Again, this program is not appropriate for everyone with aphasia. Gather information about many programs, including the program that your wife is currently attending. Her current facility may provide intensive treatment as well. Once you have gathered the information about the various programs, talk you’re your wife’s neurologist/physiatrist/primary care physician about the best treatment options. Wishing you and your wife the best. Read more.

NAA’s Regional Speaking Out! Conference is scheduled for November 18, 2021 in Atlanta.

The next Regional Speaking Out! conference! The conference, which is co-sponsored by Georgia State University’s Communication Disorders Dept, will take place in the GSU’s Student Center, located at the corner of Piedmont and Gilmer Streets in downtown Atlanta.

More information to come regarding registration and conference schedule soon!

Stroke Camp A Camping Experience for Stroke. Our mission is to provide a weekend camping experience for stroke survivors and caregivers. The retreat includes education, socialization, relaxation, great food, emotional support, and fun for all. It is an opportunity for everyone to relax and get rejuvinated.

We strive to continue to find new ways to educate our participants on such topics as speech and language resources, handicapped recreational equipment, diabetes, physical therapy, depression, nutrition, new stroke treatments, and more.

This camp which is not just about the survivor. Equally important was providing a much-needed respite for the caregivers.

There are two dates to consider. Click on this link for upcoming camp dates: Stroke Camp.

DRIVING AGAIN!

We are so proud of John for many reasons, but the newest is that he persevered and is now driving after not driving for six years. After John’s stroke in June 1995, he had a grand mal seizure about six months later leaving him with 2-minute seizures. Even though we began taking anti-seizure medicine, it would not control his 2-minute seizures. Therefore, he was unable to drive because of not knowing when a seizure would occur. However, about two years ago our doctor, Dr. Dostrow, changed his medicine. It seemed to control his seizures—he has not had any more! Therefore, John began wondering if he could now drive. After checking with the Kansas driving department, we found out that he had to be seizure free for six months. Therefore, after six months our neurologist said that John should go to The Rehabilitation Institute of Kansas City to be tested on his reflexes and his cognitive skills. Before we could begin this program, we had to have a letter from his doctor saying that he recommended John to begin his evaluation.
These are the steps we had to do in order for John to be able to drive again:

1. A written letter from your doctor.
2. Take the written test at the Kansas Driving License Department. (You can have an oral test if requested.)
3. Find a Rehabilitation Institute which has an “Automobility Driver’s Education Program”. This program will assist disabled individuals in resuming or learning to drive independently. The program consists of three broad phases: evaluation, equipment procurement and modification of your vehicle, and behind-the-wheel training. Our program cost us $410.00 for the evaluation. Some was covered by our insurance. The actual driving cost around $55.00 an hour and depends on the necessary hours they think you need to be safe and to be able to pass the driving test.
4. John had to take 10 hours of driving time.
5. Had to have a left foot gas pedal installed from the Handicap Conversions, Inc.in Kansas City. (Total cost: $276.25)
6. Went back to Kansas Driving License for final driving test.

John has never been this proud of an accomplishment as he is with having his driving license again. It means so much more independence for John. The first thing he did was to tell me the next day, “Judi, you stay home; I go to the movie!”

As you can see, this procedure took a little time for John to be a driver again; but it was worth every minute of it!

Darryl W. Moulder was born in Jackson, Mississippi. He was raised in Greenville, Mississippi (among many places) as the oldest of three sons. He completed high school at Riverside High School and went on to become a paramedic and Training Chief at the Greenville Fire Department. He worked for 22 years at The Greenville Fire Department. The priority in Darryl’s life is and was serving the Lord and being an amazing husband and father. Darryl also enjoys riding his motorcycle with friends, playing the drums, paintball, wakeboarding, and traveling.

On April 16, 2011, it seemed like a normal Saturday afternoon. Darryl and his wife, Mary, were out in the backyard playing with their children, Dawson Taylor (4) and Madelyn (1), when Darryl began staring off and was instantly unable to speak. He was rushed to the local hospital, where they were not equipped to deal with the situation. Within minutes, Darryl was paralyzed on his right side and remained unable to speak. He was then transported to Jackson, MS. The doctors explained how extremely serious Darryl’s condition was and they did not express much hope for the upcoming days; however, God is in control.

Darryl, at the young age of 39, had a massive stroke. He was diagnosed with a blood disorder. As the days passed, the doctors were amazed at what they saw. Darryl was regaining use of his right leg and gaining feeling in his right fingers.
Darryl is currently recovering at home, after three weeks at Methodist Rehabilitation in Jackson, MS. Thanks to the speech therapy and Darryl’s hard work in and out of therapy, he can now say his family members’ names and many other words if he is given verbal cues. Darryl puts 110% in all the time. Everyday is now a challenge and not very much is taken for granted. Doctors and therapists assure him that this will be a very long and challenging road for Darryl and his family. Darryl currently attends speech and occupational therapy at an outpatient facility.

An Organization dedicated to help future students within the Speech Pathology industry in finding the best program to fill their needs. Real More

From The National Stroke Association Lenice Hogan, 46, has won the identity crisis facing many stroke survivors who are progressing through recovery. “I spent two years as a victim,” says Hogan, a Faces of Stroke Ambassador, “but have definitely moved to survivor.” Hogan is a survivor of not one stroke, but three, all at young ages. She survived hemorrhagic strokes at the ages of 26, 38 and 39. Only the third was actually recognized as stroke—the first two went undiagnosed or misdiagnosed.
Read more of Lenice’s and other’s stories

Every. Second. Counts. When stroke hits, acting FAST means recognizing and responding at the first sign by calling 9-1-1 and getting to a hospital where lifesaving treatment can be given if a person arrives in time.
Everyone must know the warning signs to save lives.

That’s why the National Stroke Association is asking you to take the Five Faces Pledge right this second. It’s simple—just tell five people you care about exactly what to look for and the importance of acting FAST.

The National Stroke Association is shooting for 2,500 pledges in the next week to help launch National Stroke Awareness Month with more support than ever. Raising awareness now could mean your parent or neighbor gets the critical care they need during a stroke.

Making good on the pledge is easy. They have tools available to share with your network through email, Facebook and Twitter.

Now is our chance to break through the noise and champion this lifesaving cause.

Click here to take the Five Faces Pledge. When you tell five friends about stroke, you’ll be saving lives.

Millions of families are affected by stroke annually, and more than 100,000 people are at risk of dying this year. But if warning signs are recognized and responded to quickly, medical intervention can make for thousands of promising futures.

By teaming up with National Stroke Association, you’ll be aligned with an organization that helps give people the tools to keep our families healthy and happy. There’s no better way to spread the word than through this amazing grassroots movement.

Can we count you in on the Five Faces Pledge?

Frontotemporal Degeneration and Primary Progressive Aphasia

Family Caregiver and Professional Education and Support Conference

Saturday, March 24, 2022

Northwestern University
Thorne Auditorium, Rubloff Building
375 E Chicago Ave, Chicago, IL 60611

The purpose of the conference is to educate professionals and families about FTD and PPA and provide information on caring for those diagnosed with FTD and PPA and their families.

Register Now

Agenda
The day will open with an update on FTD and PPA research and treatment by Dr. Diana Kerwin. This year’s keynote speaker is Dr. Geri Hall, advance practice nurse from Banner Alzheimer’s Institute - Phoenix, who has lectured and published widely on behavioral interventions and communication strategies in dementia, specifically FTD and PPA. A panel of clinicians and caregivers will follow the keynote lecture. Afternoon breakout sessions and a closing plenary on stress and caregiving by Dr. Jennifer Medina will conclude the day.

Save the Date

National Aphasia Association’s

25th Anniversary Benefit

June 13, 2021
6:00 to 9:00 pm

HONOREES
Barbara Kessler

Aphasia Center of California

The NAA Founders Group
Martha Taylor Sarno, M.A., M.D. (honorary)
Martin L. Albert, M.D.
Thomas Anderson, M.D.
Alan Bandler, Esq.
Antonia Buonaguro, Ed.D.
Don A. Olson, Ph.D.

Helen Mills Event Space and Theater
137-139 West 26th Street
New York City

Details to Follow.