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My name is Sherry Tucker, I am 40 years old and I am a stroke survivor.

I also advocate to improve stroke-related policy through National Stroke Association’s Stroke Advocacy Network™ —a network of 6,800 people across the stroke community who want to make a difference.

Right now, advocates are fighting to protect additional rehabilitation services for more than 5 million survivors on Medicare—survivors like me—who have rehabilitation access limited due to caps on Medicare coverage.

We can’t do it without your help.

Click here to send a gift right now of $25, $50, $100 or more to National Stroke Association to support our programs and this important work. We need to raise $15,000 before the end of September to keep our efforts going strong.

You can help look out for stroke survivors and their loved ones for years to come.

How is that possible, you ask? Let me tell you.

Medicare caps the amount of rehabilitation services a stroke survivor can receive annually. Let’s say that amount is $2,000, but you need $4,000 to get the therapy you need. In previous years, Congress made sure there was extra money for people who went over their $2,000 cap. In 2011, our Stroke Advocacy Networkmembers worked with Congress to assure additional funding was secured for survivors on Medicare. However, Congress has to take action to make these funds available—every year!

On December 31, 2012, access to the additional rehabilitation funds will expire. The Stroke Advocacy Network will keep fighting to keep these services available—with your support we’ll have the resources to fight every year if that’s what it takes!

That’s why your donations to National Stroke Association are so important.Your generous gifts help to protect and secure recovery for so many.

The first month after my stroke I was told I would never walk again or be able to use my left arm. I sat in my wheelchair and cried. Today, I would say I am 99 percent of the woman I was before my stroke due to the therapy I was able to receive. Because of that, it’s important that I stand and fight to help others just like me.

Thank you for helping me and millions of survivors across the U.S. I promise your support for National Stroke Association has a positive and lasting impact.

Sincerely,

Sherry Tucker
Stroke Survivor and Stroke Advocacy Network Member

The Stroke Advocacy Network helps stroke survivors, caregivers and other stroke partners share their experiences, challenges and needs with decision makers. Sharing this information helps elected officials have a better understanding of how changes in healthcare and other public policies can help prevent strokes and help members of the stroke community.

Why is this important? In the United States alone:

There are approximately 7 million adult stroke survivors.
About 795,000 people will have a stroke this year.
Stroke is the fourth leading cause of death, killing about 137,000 people each year.
Stroke is a leading cause of serious, long-term disability.
The estimated direct and indirect cost of stroke was $73.7 billion in 2010.
Join National Stroke Association to advocate in Washington, D.C., and in your state capitol for the needs of stroke survivors, caregivers and their families and for policies that can help prevent strokes. More information about the federal issues the Stroke Advocacy Network is following can be found here. State-level issues can be found here (organized by state).

Add your voice to this important cause—become a stroke advocate today. The Stroke Advocacy Network is a true grassroots advocacy initiative, which is dependent on involvement from individuals like you to succeed. Stroke Advocacy Network members receive:

E-newsletters containing information about current stroke-related legislation
Opportunities to attend educational webinars about the legislative process and other advocacy topics
Tools that enable members to easily send messages to their elected officials
Other resources designed to help make communications with elected officials more effective
The Stroke Advocacy Network will provide you with information about stroke-related legislation, the legislative process, your elected officials and tips on how to communicate with them effectively. All you need to bring is a desire to help and a willingness to take action.

COMING SOON:

I have written a new book that is going to be released in late May or early June entitled: “The Teaching of Talking; Learn to do Expert Speech Therapy at Home with Children and Adults.”
It is a wonderful contribution to the field, especially since this book is designed for the families and caregivers of those who have stroke and aphasia as well as the speech language pathologists who work with stroke patients. This book was written because for many with moderate to profound aphasia, the insurance will run out way before they are at a level of communicative competence.
The Teaching of Talking teaches the family to do expert speech and language stimulation which corresponds with the way children learn to speak from the start: at home with a loving family member. I hope you will consider educating the public in this revolutionary approach to helping people with stroke and aphasia speak again.Mark A. Ittleman,MS,C
READ an article by the Author by Clicking here . To pre-order the book, click on The Teaching of Talking .

A stroke or brain injury can turn a family’s world upside down in seconds. You find yourself in the battle of your life, being guided by whomever you met at the hospital, hoping they have the answers. As time goes on and speech does not return, you begin to wonder: “What now?” “Will I (or my loved one) ever be able to speak again?”

Are you tired of gimmicks, worksheets, software, or boring one-hour sessions reciting lists of words? In my clinical practice as an expert speech-language pathologist for the past 40 years, I have seen hundreds of frustrated patients and family members who have said those very words to me.

I, too, was tired of programs that didn’t bring success to my patients. I knew there had to be a better way, so I began treating my patients differently. I put the gimmicks and worksheets and software away, and I began talking with my clients about things they were interested in. Imagine that! I learned that people learn much faster when they talk with another human instead of a computer!

The Teaching of Talking our book which has been published, is a totally new concept in speech therapy. Within its pages you will find a refreshing, revolutionary speech therapy method that will rock the world of someone you love. You see, we believe that speech therapy is best done in the home, by family and caregivers, under the supervision of a licensed speech-language pathologist familiar with the methods in The Teaching of Talking.

If you have ever taught a toddler to speak, you will quickly see why our method works when others fail. We begin slowly, with simple “yes” and “no” questions and one-word answers, and we talk with the person who is learning to speak again all day long, through all of the activities of daily living. Sound familiar? If you offer a toddler some milk, you ask him to “say ‘milk.’” Well, our method is very similar. As one-word answers begin to come easily, we expand to two-word phrases, and so on.

The fact is that in today’s system, most people with moderate to severe speaking difficulties will be discharged by an insurance company long before the need for therapy has ended. You no longer have to be bound to a speech-language pathologist or insurance company or management system that is going to discharge you soon anyway.

Take a proactive role in the speech and language stimulation of your loved one. Become a pivotal, active participant in your loved one’s recovery, not a passive observer, wondering if they will ever get better. So when the day comes that your loved one’s therapy is terminated or if they have been discharged, for whatever reason, you feel confident in going forward with speech-language stimulation at home for as long as it takes to hear them speaking with clarity once again!

If you would like to know more about this revolutionary new method, and how to order Teaching of Talking, please visit my website, http://www.teachingoftalking.com . My name is Mark Ittleman, M.S., CCC/SLP, The speech pathologist who can make a rock talk! You may contact me at markittleman@teachingoftalking.com

We are opening up this “front page” of The Aphasia Hope Foundation’s website to feature your experiences as a Survivor, Caregiver or Therapist; experiences that have given you Hope, that you could share with others. We would love to hear from you regarding different therapies, what worked, what didn’t work, exercises that can be done at home, etc. Most of all this is a place for you to share with each other and give hope and encouragement to others that find themselves in similar situations due to stroke, TBI, or illness (such as PPA). Please email your submissions to sandycaudell@aphasiahope.org .

Here is our first installment from Mary and Darryl Moulder on their experience with 4 weeks of intensive therapy at an Aphasia Center in Florida.

NAA’s Regional Speaking Out! Conference is scheduled for November 18, 2021 in Atlanta.

The next Regional Speaking Out! conference! The conference, which is co-sponsored by Georgia State University’s Communication Disorders Dept, will take place in the GSU’s Student Center, located at the corner of Piedmont and Gilmer Streets in downtown Atlanta.

For more information click on aphasia.org/Regional Conference

We at Aphasia Hope Foundation connected with Darryl and Mary Moulder shortly after Darryl, at the young age of 39, had a massive stroke.

Darryl W. Moulder was born in Jackson, Mississippi. He was raised in Greenville, Mississippi (among many places) as the oldest of three sons. He completed high school at Riverside High School and went on to become a paramedic and Training Chief at the Greenville Fire Department. He worked for 22 years at The Greenville Fire Department. The priority in Darryl’s life is and was serving the Lord and being an amazing husband and father. Darryl also enjoys riding his motorcycle with friends, playing the drums, paintball, wakeboarding, and traveling.

We asked Mary and Darryl to write about their experiences in an intensive therapy program. Mary writes:

Our visit to The Aphasia Center in St. Petersburg, FL was much different than we had expected. After months and months of fundraising and brainstorming ways to raise the funds to attend the facility, a date was finally set. We made plans to have intensive speech therapy for four weeks at Steps Forward The Aphasia Center.

The majority of the first two or three days was the beginning evaluation. This is once when Darryl was questioning the process. Although the therapists knew Darryl was unable to complete many of the activities on the assessment, he had to go through each step. Then, therapy really began on Day 4. He received 4 hours of speech therapy a day and an hour lunch with other participants. The people at the facility were all different ages, lived in different places, and were at different stages of recovery; however, they were all affected by Aphasia. Darryl enjoyed being with others that face the same challenges as he encounters each day.

The therapy included all of the different techniques that we were introduced to during therapy at home (Thanks to Renee and Gail). There was just more hours of it during a day for consecutive days and there were a variety of therapists. Each afternoon, one therapist, Darryl, and I would sit down to discuss his “homework” for the evening. While there, I requested that each therapist write down a brief explanation of what each worked on that day so we could continue the therapy at home.

While at The Aphasia Center, Darryl worked with four therapists and Dr. Lori Toblin. He became open to the idea of using other forms of communication (ipad, communication book, picture dictionary) ; however, speech was practiced in conjunction with these every day. He also worked on problem solving ways to get his message across. This was a great way for him to practice. The therapists were friendly and professional. Kathy, the in-take coordinator, is a major asset to the facility because she knows what we are going through having attended the facility with her own husband, Mike. Darryl really enjoyed his time with Mike. Darryl increased his spoken vocabulary and continues to be open to using the other forms of communication.

I wish I could tell others that they knew a secret to “curing” Aphasia; however, we all know it is just a long, hard road to recovery. We each have to take a day at a time praying for the strength to do our best. Darryl and I do see improvements all the time and we will continue to work hard each day.

We would like to thank our friends and family because the trip would not have been possible without their help. We also would like to thank the therapists, staff, and participants at The Aphasia Center for making the process meaningful and showing our family so much kindness. A special thank s to Mrs. Judi Stratinger and Aphasia Hope Foundation for her words of guidance and help. It is always nice to have someone that has gone through what you are facing. Many people ask us if we feel like it was worth it to attend The Aphasia Center, and we answer yes. Darryl gained a lot from the experience.

To read more on Darryl’s background, Cllck here .

Stroke Camp A Camping Experience for Stroke. Our mission is to provide a weekend camping experience for stroke survivors and caregivers. The retreat includes education, socialization, relaxation, great food, emotional support, and fun for all. It is an opportunity for everyone to relax and get rejuvinated.

We strive to continue to find new ways to educate our participants on such topics as speech and language resources, handicapped recreational equipment, diabetes, physical therapy, depression, nutrition, new stroke treatments, and more.

This camp which is not just about the survivor. Equally important was providing a much-needed respite for the caregivers.

There are two dates to consider. Click on this link for upcoming camp dates: Stroke Camp.

From The National Stroke Association Lenice Hogan, 46, has won the identity crisis facing many stroke survivors who are progressing through recovery. “I spent two years as a victim,” says Hogan, a Faces of Stroke Ambassador, “but have definitely moved to survivor.” Hogan is a survivor of not one stroke, but three, all at young ages. She survived hemorrhagic strokes at the ages of 26, 38 and 39. Only the third was actually recognized as stroke—the first two went undiagnosed or misdiagnosed.
Read more of Lenice’s and other’s stories

Every. Second. Counts. When stroke hits, acting FAST means recognizing and responding at the first sign by calling 9-1-1 and getting to a hospital where lifesaving treatment can be given if a person arrives in time.
Everyone must know the warning signs to save lives.

That’s why the National Stroke Association is asking you to take the Five Faces Pledge right this second. It’s simple—just tell five people you care about exactly what to look for and the importance of acting FAST.

The National Stroke Association is shooting for 2,500 pledges in the next week to help launch National Stroke Awareness Month with more support than ever. Raising awareness now could mean your parent or neighbor gets the critical care they need during a stroke.

Making good on the pledge is easy. They have tools available to share with your network through email, Facebook and Twitter.

Now is our chance to break through the noise and champion this lifesaving cause.

Click here to take the Five Faces Pledge. When you tell five friends about stroke, you’ll be saving lives.

Millions of families are affected by stroke annually, and more than 100,000 people are at risk of dying this year. But if warning signs are recognized and responded to quickly, medical intervention can make for thousands of promising futures.

By teaming up with National Stroke Association, you’ll be aligned with an organization that helps give people the tools to keep our families healthy and happy. There’s no better way to spread the word than through this amazing grassroots movement.

Can we count you in on the Five Faces Pledge?