Browsing Posts in Experiences

Our 30 yr old daughter Teresa was not the usual aphasia patient.  Rather than being the result of a stroke, her aphasia was caused by brain tumor growth, at end stage GBM brain cancer. Teresa’s voice and ability to speak faded away over the period of a month.   As her voice slipped away, along […]

Nearly 11 years ago Dan Zimmerman was sipping coffee on a relaxing day just after Thanksgiving when suddenly the screaming sound of an ambulance’s siren hurt his ears as he was rushed to a hospital following a stroke. “It was devastating. My life changed in a second,” said Zimmerman of Phoenix. “I had no movement […]

Kelley is a young wife, mother of two daughters and stroke survivor. Check out her story on YouTube.

From National Stroke Association: Faces of Stroke is a multimedia public awareness campaign that aims to show the personal side of stroke while educating about lifesaving stroke information through personal stories of stroke champions. The gallery is categorized by survivors, caregivers and family and healthcare professionals. Read or submit your Story.

Initially, in the early days after my stroke, I felt like I LOST so much of myself and my capabilities. I couldn’t read, I couldn’t write, I couldn’t use the computer, cook a meal, or do laundry. Most importantly, I couldn’t think or process information. Working was not an option. I felt like I deserted […]

Home Alone What happens when you live alone and have a stroke? Vanessa Lipske found out the hard way. In many ways, what Vanessa Lipske endured in the summer of 2012 was every single person’s nightmare. Her ordeal began on a Sunday evening in Cobb County, Ga., just outside of Atlanta. Lipske, who was then […]

“Please, don’t help me!” About the difference between help and support. This is an article with good information and advice from Wolfgang Wolf. By the time a patient leaves the hospital, usually he/she has been helped so much that they have forgotten (or unlearned) how to make decisions. At home it continues. The recovering patient […]

This is in response to the article that appeared in the New York Times on March 7, 2014: Click on Article It’s called “Aphasia”. Ever the aphasia advocate, the Executive Director of National Aphasia Association, Ellayne Ganzfried, immediately wrote to the NY Times about the omission of the word “Aphasia”. They are pleased to announce […]

MONDION, France — ONE early evening a week before last Christmas, I sat down at my desk to answer a letter. But just as I was about to write the first words, I felt as if they were escaping me, vanishing into air before reaching the paper. I was surprised but not concerned. I was […]

Introduction: After many years of rehabilitation, and numerous counselling sessions with, not only other stroke survivors, but also, other people who have experienced a life-changing event of some sort, this article looks at how patients reflect on their rehabilitation. It asks: is enough being done to assist the patient to regain control of his/her life […]