Browsing Posts in Experiences

Kelley is a young wife, mother of two daughters and stroke survivor. Check out her story on YouTube.

From National Stroke Association: Faces of Stroke is a multimedia public awareness campaign that aims to show the personal side of stroke while educating about lifesaving stroke information through personal stories of stroke champions. The gallery is categorized by survivors, caregivers and family and healthcare professionals. Read or submit your Story.

Initially, in the early days after my stroke, I felt like I LOST so much of myself and my capabilities. I couldn’t read, I couldn’t write, I couldn’t use the computer, cook a meal, or do laundry. Most importantly, I couldn’t think or process information. Working was not an option. I felt like I deserted […]

Home Alone What happens when you live alone and have a stroke? Vanessa Lipske found out the hard way. In many ways, what Vanessa Lipske endured in the summer of 2012 was every single person’s nightmare. Her ordeal began on a Sunday evening in Cobb County, Ga., just outside of Atlanta. Lipske, who was then […]

“Please, don’t help me!” About the difference between help and support. This is an article with good information and advice from Wolfgang Wolf. By the time a patient leaves the hospital, usually he/she has been helped so much that they have forgotten (or unlearned) how to make decisions. At home it continues. The recovering patient […]

This is in response to the article that appeared in the New York Times on March 7, 2014: Click on Article It’s called “Aphasia”. Ever the aphasia advocate, the Executive Director of National Aphasia Association, Ellayne Ganzfried, immediately wrote to the NY Times about the omission of the word “Aphasia”. They are pleased to announce […]

MONDION, France — ONE early evening a week before last Christmas, I sat down at my desk to answer a letter. But just as I was about to write the first words, I felt as if they were escaping me, vanishing into air before reaching the paper. I was surprised but not concerned. I was […]

Introduction: After many years of rehabilitation, and numerous counselling sessions with, not only other stroke survivors, but also, other people who have experienced a life-changing event of some sort, this article looks at how patients reflect on their rehabilitation. It asks: is enough being done to assist the patient to regain control of his/her life […]

I Wish Somebody Would Have Told Me About… Jim Sinclair shares. Over the past ten years, on many occasions members of my support groups have started statements with this beginning. Three years ago, in a support group meeting, a survivor named Marcia made the statement that she wished someone would have told her about many […]

This Posted to Stroke Smart by Kevin Vicker Sep 24 2013 About a month after a major stroke in January 2012, U.S. Senator Mark Kirk received a letter of encouragement from Jackson Cunningham, a fellow stroke survivor. Kirk says Jackson’s letter was by far the best he received. The two quickly became pen pals and […]