Aphasia Hope Foundation » Organizations http://www.aphasiahope.org Fri, 03 Feb 2012 01:28:39 +0000 http://wordpress.org/?v=2.9.2 en hourly 1 Communication Partner – Aphasia Therapy on Video http://www.aphasiahope.org/2010/09/19/communication-partner-%e2%80%93-aphasia-therapy-on-video/ http://www.aphasiahope.org/2010/09/19/communication-partner-%e2%80%93-aphasia-therapy-on-video/#comments Sun, 19 Sep 2010 15:50:03 +0000 admin http://www.aphasiahope.org/?p=1700 Continue Aphasia Therapy at Home with our Video Programs

Communication Partner produces video programs that provide aphasia speech therapy for stroke survivors and victims of traumatic brain injury.

Researchers agree that aphasia recovery dramatically improves as a result of intense aphasia treatment.

Unfortunately, few aphasia sufferers receive enough therapy to maximize recovery. How much is enough speech therapy?
One aphasic client tells more about the struggles of Aphasia than anything else on this site. During a phone conversation, he said the following:
He said “Stroke…3 years(ago)…52 years old…Aphasia…oh man…oh man…Medicare…3 visits(therapy)…month…oh man…Before Stroke…20 friends…now…Zero friends…Aphasia…oh man”

Aphasia impairs the ability to communicate but doesn’t affect intelligence or feelings. We all have an inherent need to communicate and connect with each other. Call to order: Toll Free Customer Service 888-204-6020 or order on internet:
Communication Partner

]]> http://www.aphasiahope.org/2010/09/19/communication-partner-%e2%80%93-aphasia-therapy-on-video/feed/ 0 The Internet Stroke Center http://www.aphasiahope.org/2010/02/21/the-internet-stroke-center-1/ http://www.aphasiahope.org/2010/02/21/the-internet-stroke-center-1/#comments Sun, 21 Feb 2010 22:37:09 +0000 Sandy Caudell http://www.aphasiahope.org/?p=508 The Stroke Trials Directory is a continuously updated registry of randomized clinical trials. This project is a joint effort of the Internet Stroke Center at Washington University School of Medicine, the American Stroke Association and the National Institute of Neurological Disorders and Stroke.

This directory is intended for health professionals and research scientists.

For Patients and families seeking trial information: . To learn about clinical trials in stroke, or to find a trial near you, please visit Clinical Trial Listings and Resources in our Patients and Families section or Click Here.

]]> http://www.aphasiahope.org/2010/02/21/the-internet-stroke-center-1/feed/ 0 Stroke of Hope http://www.aphasiahope.org/2010/02/21/stroke-of-hope/ http://www.aphasiahope.org/2010/02/21/stroke-of-hope/#comments Sun, 21 Feb 2010 18:20:53 +0000 Sandy Caudell http://www.aphasiahope.org/?p=617 Their Mission:
STROKE OF HOPE FOUNDATION is an organization committed to improving quality of life for people by creating stroke awareness, promoting prevention and providing support for stroke survivors, their care partners and families by encouraging physical and emotional recovery, and maintaining an on-line support system. It is our firm belief that the level of recovery for all concerned is largely contingent upon attitude, adjustment and tenacity. Survival is just the beginning. We want to help you reach far beyond that.

Click on Stroke of Hope to learn more.

]]> http://www.aphasiahope.org/2010/02/21/stroke-of-hope/feed/ 0 Stroke of Hope Club, Inc. http://www.aphasiahope.org/2010/02/21/stroke-of-hope-club-inc/ http://www.aphasiahope.org/2010/02/21/stroke-of-hope-club-inc/#comments Sun, 21 Feb 2010 18:13:40 +0000 Sandy Caudell http://www.aphasiahope.org/?p=599 The mission of Stroke of Hope Club, Inc. is to work toward increased awareness of stroke prevention, improved community education, and —above all— to provide information, education and support to stroke “victors”, their families and friends. The Stroke of hope Club, Inc. provides services to all stroke “victors”, their families and friends. recognizing that no two strokes are the same and no two families coping with stroke do so in the same way.

Stroke of Hope Club, Inc. provides services throughout Palm Beach, Martin and Indian River Counties. We offer monthly meetings for stroke victors and caregivers, including separate support groups.

]]> http://www.aphasiahope.org/2010/02/21/stroke-of-hope-club-inc/feed/ 0 Connect – The Community Disability Network http://www.aphasiahope.org/2008/06/11/connect-the-community-disability-network/ http://www.aphasiahope.org/2008/06/11/connect-the-community-disability-network/#comments Wed, 11 Jun 2008 16:39:11 +0000 Sandy Caudell http://www.aphasiahope.org/?p=605 Their vision is a world where people with aphasia (communication disability) can find opportunity and fulfilment.
We work to promote effective services, new opportunities and a better quality of life for people living with aphasia.
Our aims are to:
• equip people living with aphasia to reconnect with life again
• improve services and increase opportunities available for people living with aphasia by changing attitudes and practices in service provision
• increase the ways in which people living with aphasia can be authentically involved in the services and opportunities available to them.

Learn More

]]> http://www.aphasiahope.org/2008/06/11/connect-the-community-disability-network/feed/ 0 Steps Forward http://www.aphasiahope.org/2008/04/10/steps-forward/ http://www.aphasiahope.org/2008/04/10/steps-forward/#comments Thu, 10 Apr 2008 18:28:22 +0000 Sandy Caudell http://www.aphasiahope.org/?p=601 Steps Forward offers a wide variety of speech-language therapy and other therapy services. This summer they are offering an inaugural session of intensive speech-language therapy at their new St. Petersburg, Florida office to help stroke survivors to regain many of their pre-stroke activities

Clients will receive a total of five (5) hours of therapy daily Monday through Friday for a total of 150 hours of therapy. Three hours of each day will be individual therapy with a Master’s degree or Doctoral level therapist. The client will attend one hour daily of group therapy, which may consist of professional counseling groups, art therapy, paired task completion, group projects, client-led discussion groups, and themed speech and language activities. One hour each day will consist of computer-based therapy projects or other small group session.

Learn More

]]> http://www.aphasiahope.org/2008/04/10/steps-forward/feed/ 0 The Brain Matters http://www.aphasiahope.org/2008/04/01/the-brain-matters/ http://www.aphasiahope.org/2008/04/01/the-brain-matters/#comments Tue, 01 Apr 2008 20:14:19 +0000 Sandy Caudell http://www.aphasiahope.org/?p=598 This site will help you better understand common disorders of the brain, as well as learn about people living with the disorders. The information was prepared by neurologists-doctors with specialized training in diagnosing, treating, and managing disorders of the brain and nervous system.

For information on stroke, click on Visit TheBrainMatters.org, the Academy’s public education website, .for comprehensive coverage of neurologic issues

]]> http://www.aphasiahope.org/2008/04/01/the-brain-matters/feed/ 0 Aphasia Connection http://www.aphasiahope.org/2008/02/21/aphasia-connection/ http://www.aphasiahope.org/2008/02/21/aphasia-connection/#comments Thu, 21 Feb 2008 20:33:34 +0000 Sandy Caudell http://www.aphasiahope.org/?p=447 Whether just recovering from a stroke or several years past, these services may be beneficial not only to language skills, but also to the emotional well being of the clients and their families.

Carol Dow-Richards, BS Psychology, has been an advocate for people with aphasia since 1995, when her ten-year-old son, David, suffered a massive stroke.

Carol began Aphasia Connection to help meet the needs of families struggling with aphasia. She focuses not only on the issue of aphasia itself, but its broad impact on the life of the entire family.

You can email Carol (please put in “Aphasia” on Subject line) at theaphasiafamily@aol.com.

To read her son David’s account, please Click Here .

Carol was also recently interviewed by Northwestern University and is a featured speaker at their 2008 conference.

]]> http://www.aphasiahope.org/2008/02/21/aphasia-connection/feed/ 0 Speech Disorder http://www.aphasiahope.org/2008/01/24/speech-disorder/ http://www.aphasiahope.org/2008/01/24/speech-disorder/#comments Thu, 24 Jan 2008 19:23:55 +0000 Sandy Caudell http://www.aphasiahope.org/?p=573 Speech Disorder was formed to offer a unique reference point on speech disorders: causes. treatments and therapies.

The site explores the numerous types of speech disorders and the techniques used by speech therapists to help cure them.

Their features and articles are written by professional journalists and experts – who have a particular interest, or a background in this

Speech Disorder contains over 70 articles all written by their team of experts and they add around 10 new articles each month. Click on Speech Disorder

]]> http://www.aphasiahope.org/2008/01/24/speech-disorder/feed/ 0 International Self Help Organizations http://www.aphasiahope.org/2008/01/15/international-self-help-organizations/ http://www.aphasiahope.org/2008/01/15/international-self-help-organizations/#comments Tue, 15 Jan 2008 21:03:53 +0000 Sandy Caudell http://www.aphasiahope.org/?p=567 Argentina
Fundación Argentina de Afasia Charlotte Schwarz

http://www.fundafasia.org

Dr. Sylvia Rubio-Bruno – Présidente, srubio@intramed.net.ar Colombres 229 (C1177AAE) Ciudad Autónoma de Buenos Aires República Argentina Tel./ Fax: (54-11) 4957-1120 /1792/4954-6594/154-086-2492 E-mail: fundafasia@intramed.net

Australia
Australian Aphasia Association Inc.
www.aphasia.org.au
Ms. Georgi Laney – Chairperson georgi.laney@hnehealth.nsw.gov.au
Matthew Bradley – Deputy Chairperson Matthew.Bradley@nh.org.au
PO Box 6104, St Lucia Qld 4067 Phone: 0439 755 052, ABN: 53 872 558 043
Email: questions@aphasia.org.au

Austria
Selbsthilfegruppe Wien
www.aphasie-club.at
Kommission f. Linguistik Kegelgasse 27 / 3. Stock 1030 Wien Tel.: 01 7130380
info@aphasie-club.com

Belgium
1 Vereniging Afasie V.Z.W.

http://www.afasie.be/

Lieve Vercruysse, Tijl Uilenspiegellaan 92, 2050 Antwerpen, livercruysse@village.uunet.be, Tel: 03/219.21.47
Secretariaat: p/a Els De Meulenaere, Dorre Eikstraat 46, 2550 Kontich, België, Tel: 0497/04.34.05
2 Fédération Belge pour Aphasique

http://www.aphasia-international.com/be/index.html

Viviane Speleers viviane.speleers@belgacom.net
Philippe Smets smets.philippe@coditel.net av de Héros 50, B – 1160 – Bruxelles tél : 32.2.762.3638 fax 32.2.762.58.77

Canada
1 Les coordonnées du RAPAQ

http://www.aphasiequebec.org/

Jean-Marie Grenier – Président
Le Regroupement des associations de personnes aphasiques du Québec (RAPAQ) 150, rue Grant, bureau 305 Longueuil (Québec) J4H 3H6 Téléphone : (450) 646-1473, 1-877-626-1473 (sans frais), Télécopieur : (450) 646-0575 Courriel : rapaq@qc.aira.com
2 York-Durham Aphasia Centre (YDAC)

http://www.ydac.on.ca

Main Office 12184 Ninth Line Stouffville, Ontario, Canada L4A 3N6
Tel: (905) 642-2053 or Email: ydac@ydac.on.ca
3 The Aphasia Institute www.aphasia.ca
73 Scarsdale Road Toronto, ON M3B 2R2 Canada
Tel/Fax/E-mail
Tel: 416-226-3636, Fax: 416-226-3706
E-mail: aphasia@aphasia.ca

Czech Republic
Klub Afasi

http://afasie.wz.cz/

Centrum pro zdravotně postižené Wuchterlova 11 160 00 Praha 6
Tel.: 604 340 637
Viktorie Bartoníčková viktorie.bartonickova@post.cz
Ve Střešovičkách 60 169 00 Praha 6

Denmark
HjerneSagen

http://www.hjernesagen.dk/

Lise Beha Erichsen, Direktor
Kløverprisvej 10B, 2650 Hvidovre
admin@hjernesagen.dk
Tlf: 36 75 30 88, Fax: 36 75 30 98

Estonia
Eesti Afaasialiit
www.afaasia.ee
Külli Roht roht@afaasia.ee
Kase 25 A, Tallinn 11012
Tel.: 6480118, A/a 10022010065003
info@afaasia.ee (Estonia)

Finland
Erityisosaamiskeskus Suvituuli

http://www.stroke.fi/index.html

Marika Railila marika.railila@stroke.fi Suvilinnantie 2 20900 TURKU puh. (02) 2138 200 (vaihde), faksi (02) 2138 210 aivohalvaus.dysfasia@stroke.fi

France
Fédération Nationale d’Aphasiques de France

http://www.aphasie.fr/

Dr. Jean Dominique Journet jean.do.journet@aphasie.fr
Le grand jardin “Les cèdres” bat.8 Avenue Grenadier Chabaud 83160 La Vallette du Var Tél : 04 94 20 03 37
info@aphasie.fr

Greece
Angela Paspaliari
apaspaliari@yahoo.gr
1 Bundesverband für die Rehabilitation der Aphasiker e. V.
www.aphasiker.de
Heinz Terstegen, Vorsitzender
info@aphasiker.de
Wenzelstraße 19, 97084 Würzburg
Tel. 0931 / 25 01 30-0, Fax: 0931 / 25 01 30-39
2 Aphasiker-Zentrum Oberfranken e. V. www.aphasikerzentren.de
Dr. Erich Rieger, rieger@aphasikerzentren.de
Jakob-Herz-Str. 1 95445 Bayreuth Tel.: 0921 309-507, Fax: 0921 309-201

Ireland
Speechmatters

http://www.speechmatters.org/

Graham House, Knockbracken Healthcare Park, Saintfield Road, Belfast BT8 8BH, Tel: 028 9050 8020, Fax: 028 9050 8025 E-mail: info@speechmatters.org

Italy
A.IT.A.onlus Federazione (Associazioni Italiane Afasici)

http://www.aita-onlus.it

Anna Basso – Presidente
Prof. Dr. Franco Denes – Consiglieri denes@unive.it
Sede Legale Via San Primo, 6
20121 Milano il Numero Verde è attivo: 800 912 326 e-mail: aita@aita-onlus.it

Japan

http://www2u.biglobe.ne.jp/~japc/

Tôkyô, Shinjukuku, Kawadachô 10-15, Apartmenthaus 120, PLZ 62-0054
Mutsumi Miyata mutsumim@fa2.so-net.ne.jp
E-mail japc@mtg.biglobe.ne.jp

Luxemburg
ASSOCIATION LUXEMBOURGEOISE DES APHASIQUES ASBL – AFASI

http://www.info-handicap.lu/afasi/

Boîte Postale 27 L-5201 Sandweiler
+352 44-54-64-1 ou +352 35 60 25 (Après 19.00), Fax : +352 45-39-24
Gaby Zeimet-Schloesser
zeimgeo@pt.lu

Netherlands Afasie Vereniging Nederland (AVN) & Stichting Afasie Nederland (SAN) http://www.afasie.nl
Dirk Jan Epke
Bakenbergseweg 125 6814 ME Arnhem TEL: 026-3512512, FAX: 026-3513613 E-MAIL: san@afasie.nl E-MAIL: avn@afasie.nl
Eric Schuuring: fam.schuuring@wxs.nl
Norway

Afasiforbundet i Norge

http://www.afasi.no/

Ingjerd Haukeland – Forbundsleder
Postboks 8716, Youngstorget, 0028 OSLO
Telefon 22 42 86 44 Telefax 22 41 87 04
E-post: afasi@afasi.no

Portugal
Associacao Nacional de Afásicos

http://www.anafasicos.org/

Rua Costa Malheiro, Lt. A1 Lj. A 1800-412 Lisboa
Presidente da Direcção
Dr.ª Maria da Conceição Matos
Telemóvel: 965 441 222
E-mail: mconceicaogmatos@gmail.com
info@anafasicos.org

Spain
Asociación Ayuda Afasia
www.afasia.org

http://personales.ya.com/inkontinencia/afasia/index.html

Infanta Mercedes 109–111
Portal B Planta 6º, 3-4
Tel.: (+34) 91.210.34.70
info@afasia.org
(keine spezielle Kontaktperson)
Mercedes Parellada i Montero
Mlluisa_gonzalez@yahoo.es

Sweden
Afasi Förbundet i Sverige
www.afasi.se
Kanslichef: Marianne Åkerlund marianne@afasi.se
Kampementsgatan 14 115 38 Stockholm
telefon 08-54 56 63 60, fax 08- 54 56 63 79
internet: info@afasi.se
www.afasi.se

Switzerland
aphasie suisse

http://www.aphasie.org/home.htm

Jean Marie Annoni, Präsident, Prof. Dr. med. Neurologe FMH, H.C.U.G. 1211 Genève 4 – Präsident Jean-Marie.Annoni@hcuge.ch
Bernadette Schaller-Kurmann – Geschäftsstellenleiterin bernadette@gmx.ch
Zähringerstrasse 19
CH-6003 Luzern
per Telefon ++41 41 240 05 83, per Telefax ++41 41 240 07 54 per E-Mail info@aphasie.org

United Kingdom
1 Speakability

http://www.speakability.org.uk/

Chief Executive: Melanie Derbyshire
Janet Rockliffe: jrockliffe@talktalk.net
1 Royal Street London SE1 7LL
Tel: 020 7261 9572, Fax: 020 7928 9542 e-mail: speakability@speakability.org.
2 Connect

http://www.ukconnect.org/

Sally Byng – Access to Life in Cornwall Project Director, sallybyng@ukconnect.org
Carole Pound – Acting Chief Executive and Director of Innovation, carolepound@ukconnect.org
16-18 Marshalsea Road, London SE1 1HL
mariamcdonnell@ukconnect.org (Maria McDonnell)
3 Speakeasy

http://www.buryspeakeasy.org.uk

Gill Pearl, Director
5 Market Chambers Ramsbottom Bury BL0 9AJ
Tel.: 01706 825802
info@buryspeakeasy.org.uk
4 The Tavistock Trust for Aphasia

http://www.aphasiatavistocktrust.org

Sylvia Hemming sylvia@aphasiatavistocktrust.org
The Tavistock Trust for Aphasia Registered Charity No. 1015323 Bedford House George Street Woburn MK17 9PX
Tel.: +44 (0) 1525 290002, Fax: +44 (0) 1525 290903
tavistocktrust@btconnect.com

USA
1 National Aphasia Association (NAA)
www.aphasia.org
Barbara C. Martin – Executive Board President
Jacqueline Hinckley, Ph.D., CCC-SLP – Vice President Programs Huber
Joan F. Peters peters@aphasia.org 350 Seventh Avenue, Suite 902 New York, NY 10001 phone: (800) 922-4622
e-mail: responsenter@aphasia.org
2 Aphasia Hope Foundation http://www.aphasiahope.org
P.O. Box 26304, Shawnee Mission, KS 66225-6304 Phone: 913.484.8302
Judi Stradinger, Executive Director, judistradinger@aphasiahope.org, Sandy Caudell, Programs Director
sandycaudell@aphasiahope.org

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