Stroke of Hope Club, Inc.

The mission of Stroke of Hope Club, Inc. is to work toward increased awareness of stroke prevention, improved community education, and —above all— to provide information, education and support to stroke “victors”, their families and friends. The Stroke of hope Club, Inc. provides services to all stroke “victors”, their families and friends. recognizing that no two strokes are the same and no two families coping with stroke do so in the same way.

Stroke of Hope Club, Inc. provides services throughout Palm Beach, Martin and Indian River Counties. We offer monthly meetings for stroke victors and caregivers, including separate support groups.

Leveron Doorknobs

Developed by Bill Lind after his stroke, Leveron converts all standard doorknobs to levers for people with hand, wrist or visual problems. It comes in one size that fits all inside and outside doorknobs and can be installed quickly without removing the existing doorknob. It costs approximately $14.95 and comes in many colors, including one that glows in the dark. Leveron meets ADA quidelines. To purchase call the manugacturer directly at (781) 237-8177 or go to www.abledata.com OR www.dynamic-living.com .

SR-Cognition

The materials in this kit provide a multisensory framework to allow clients to re-learn skills and concepts through their most effective learning modality.

Target rehabilitation areas of this kit include:
• Orientation
• Attention and Scanning
• Memory
• Receptive and Expressive Language
• Reasoning and Problem Solving

Contents of this kit include:
• A tote box
• A master workbook
• A supplemental reproducable workbook
• Eighty-five up-to-date photo cards
• Twenty picture cards
• A dry erase pen

Product Reviews

Professionals:
“The progression of word-finding activities was well-structured allowing the patient to feel successful by providing the ’scaffolding’ as needed. The stimulus items themselves were interesting to both the patient and the therapist and stimulated increased language production.” -ML, California

“I use the [SR-Cognition] kit with Aphasic and Cognitive patients. It’s realistic and hands-on; not just a workbook or papers.” -TB, Texas

Read More OR order by clicking on www.speechremedy.com .

C-Speak Aphasia

C-Speak Aphasia is a complete set of interactive boards in which pictures are selected on the screen and combined to make a novel message that can be spoken or written. Little or no reading comprehension or spelling ability is required. C-Speak Aphasia includes a training manual, 85 boards, a screening test with 15 boards, 28 stimulus cards, and a score sheet. Read More .

Author: Paul R. Rao

I was recently appointed to the Board of the National Aphasia Association (NAA), which prompts me to share a rather unique experience surrounding the aura of “aphasia.”

On the day last spring when the NAA’s annual gala was held in New York City, my wife, Martina, and I took a train to New York and arrived around lunch time. We had time to kill before the gala so we ambled around Bryant Park, right behind the New York Public Library. In the middle of the park was a large white tent. Inside was a treasure trove of books. The Academy of American Poets was giving away free volumes of poetry in recognition of National Poetry Month.

Not being much of an aficionado of poetry, I selected the thinnest volume, The Long Meadow by Vijay Seshadri, as my book of poetry. I randomly opened the book to a poem. There, on page 26, was a poem entitled “Aphasia.” Martina and I looked at each other with incredulity and an eerie feeling that a “Broca” spirit was channeling me to that page. What are the odds that considering all of the many volumes of poetry under the big tent that there would be even one tiny poem on aphasia? Miraculously, hours before the gala to celebrate the victory of the human spirit in coping with aphasia, I was given a gift of poetry that so deftly captures the essence of fluent aphasia.

His signs flick off.
His names of birds
and his beautiful words—
eleemosynary, fir, cinerarium, reckless—
skip like pearls from a snapped necklace
scattering over linoleum.

His thinking won’t
venture out of his mouth.
His grammar heads south.
Pathetic his subjunctives; just as pathetic
his mangling the emphatic enclitic
he once was the master of.

Still, all in all, he has
his inner weather of pure meaning,
though the wind is keening
through his Alps and his clouds hang low
and the forecast is “Rain mixed with snow,
heavy at times.”

(Reprinted from The Long Meadow, Graywolf Press, 2004; this poem first appeared in The New Yorker.)

To read the complete article including the Poem entitled: “Aphasia”, please Click Here.

Caregiving Resources

The American Stroke Association has a great list for Caregiver Resources on their website. Click on this link to access: Caregiver Resources

Author: Susan Payne, GUMC Communications

Millions of Americans suffer from a disorder known as aphasia, the root of which comes from the Greek aphatos, or “speechless.” Rhonda Friedman, PhD, professor of Neurology, believes it is important that those afflicted with the disorder—who number greater than those with Parkinson’s disease, cerebral palsy, or muscular dystrophy—are given hope.

Friedman directs Georgetown University Medical Center’s Center for Aphasia Research and Rehabilitation (CARR), which works to find new treatment options for patients with aphasia, in order to optimize and lengthen their lives with their families and loved ones.

Although not a result of cognitive or intellectual impairment, aphasia severely limits a person’s ability to speak and understand others, and most people experience difficulty reading and writing. It is most often caused by a stroke or other brain injury. Dr. Friedman’s research explores how language is processed in a healthy brain, how language breaks down in a brain damaged by stroke, head injury, or dementia, and how the brain recovers language functions.

Friedman and her CARR colleagues’ understanding of the neuropsychological and neural mechanisms of aphasia and normal cognition have led to increased successes in the treatment of the loss of language functions from stroke, head injury, or dementia. Friedman’s lab uses techniques such as behavioral studies, treatment studies, functional magnetic resonance imaging (fMRI), event-related potentials (ERP), and eye-tracking.

Her most recent research has involved the development of a paradigm designed to slow the word finding difficulties (anomia) of dementia non-pharmacologically. Since the ability to read words lasts longer than naming in dementia, the study pairs pictures of objects and family members with their written names, to strengthen the brain’s connections before they begin to weaken due to disease.

Friedman’s current clinical study involves patients with primary, progressive aphasia—which is caused by problems with language-processing mechanisms; the ultimate goal of her study is to evaluate whether a treatment may be beneficial for patients in the early stages of Alzheimer’s disease.

Aphasia’s impact on a person’s ability to communicate is often frustrating, and while treatment options are improving, effective therapies take time to develop.

Friedman states simply: “There is never a time to give up hope… in a patient’s recovery, you don’t tell them to give up. With the right intervention and appropriate targeting, the connections in the brain can be strengthened. We are moving closer to a cure.”

Read, print or email this article by Clicking Here .

For more information, please visit Friedman’s Lab online .

Mary Beth Clark, MS/CCC

Mary Beth Clark is a speech-language pathologist who has worked for more than 15 years in the area of Communicative Disorders and Rehabilitation. She is currently working as a Supervisor in speech language pathology at Luther Midelfort, Mayo Health System in Eau Claire, WI. Her primary clinical interests are aphasia and traumatic brain injury. She is focused on assisting individuals and families achieve meaningful functional outcomes within their rehabilitation. She has collaborated with numerous individuals and families to provide volunteer program opportunities for people living with aphasia. She is co-developer of the Chippewa Valley Aphasia Group in Eau Claire, WI and is the Chippewa Valley Aphasia Camp director.

You can ask questions of our current month’s Professional by clicking here.

Driving After a Stroke

Author: Jillian Dworak

The following is from an Article from the Rehabilitation Institute of Chicago Life Center, reviewed March 2006:

For most people, being able to drive is a sign of independence and freedom. Driving enables people to get to the places they want to go and do what they want to do. It is something that many of us have done for much, if not most, of our lives. Nevertheless, driving is a very complex skill. Our ability to drive safely can be affected by changes in our physical, emotional, and medical condition. The goal of this brochure is to:

assist you, your family, your physician, and other health care professionals address how a stroke may affect your ability to drive; and
introduce you to the Driver Rehabilitation Program at the Rehabilitation Institute of Chicago.

To access more information from RIC please Click Here.

The American Stroke Association also has the following article. You can access it by clicking Here .

Author: Dr. Richard Steele

Language processing in Broca’s area during word comprehension tasks is both surprisingly rich in content and complex in operation, according to the newest research. Although historically Broca’s area has been associated with motor planning and execution for speech production, the new findings involve it in other types of linguistic processing: lexical (helping to identify words), grammatical (helping to identify forms, such as plurals or past tenses), and phonological (helping to identify pronunciations). Moreover, these three types of processing happen in rapid-fire sequence — three waves in succession that together span approximately one quarter of a second; they register at approximately 200 milliseconds, 320 milliseconds, and 450 milliseconds after the stimulus on probes in Broca’s area. Such tightly-clustered three-wave patterns of processing in response to linguistic stimuli have not appeared in probes outside of Broca’s area.
Read More

Read More “Topics in Aphasia”.