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aphasia support groups
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Replies: 3 - Pages: [1] - Last reply: 2021-04-27 08:42:05 - By: Maura Silverman
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Alexis
(Member)

Posts: 1
Registered:
2021-04-26 23:55:27

My niece(six) was just diagnosed with aphasia due to a stroke she had in the womb. I am trying to help my sister and her husband find a support group to help them through this diagnosis.

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Sandy Caudell
(Admin)

Posts: 13
Registered:
2021-04-26 00:03:56

My heart goes out to you and your family during this difficult time. There are two sites I’ll recommend which are http://www.aphasia.org and then click on support groups. That will give you a listing of support groups throughout the United States. Also, go to the Pediatric Stroke Network which is http://www.pediatricstrokenetwork.com and click on support groups which is on the bar at the left bottom. I will also ask our professional for the Month, Maura Silverman to also answer. My prayers are with you.

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Maura Silverman
(Member)

Posts: 48
Registered:
2021-04-26 00:03:56

Your sister and her family are also in my thoughts and they are fortunate that you are there to help them. The Pediatric Stroke Network is really a great forum and there are many resources they will be able to offer you in your own community (and theirs if it is different). You may also check with the pediatric speech pathologist working w/her on resources through the school system. Child life specialists at area hospitals also have excellent connections with support systems, materials and family friendly information for them to share.
One of our board members actually has a granddaughter who is also 6 with the same diagnosis. She is doing awesome!! So, keep in touch and I’ll add more info as I speak w/her about ideas or email me at the above address.
My best,
Maura

>My niece(six) was just diagnosed with aphasia due
>to a stroke she had in the womb. I am trying to
>help my sister and her husband find a support
>group to help them through this diagnosis.

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