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Replies: 3 - Pages: [1] - Last reply: 2021-10-16 18:10:29 - By: Roberta Elman
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Margie
(Member)

Posts: 1
Registered:
2021-04-26 23:55:27

After two yrs. of searching for answers to my Husband,s declining speech, we received the diagnosis of primary progressive aphasia, a form of dementia. He is practically mute now.I realize this will progress, but, don’t know how or when. Is there a support group in Charlotte, NC? I need to learn all I can.

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Sandy Caudell
(Admin)

Posts: 13
Registered:
2021-04-26 00:03:56

Hi Margie - One great source for support groups is through the National Aphasia Association. If you “cut and paste” this
address it will take you to their page which
lists all support groups for every state. I will
also forward this inquiry on to our Professional for the Month.

http://www.aphasia.org/aphasia_community/aphasia_community_groups.html

Best of Luck to you.

Sandy

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Roberta Elman
(Member)

Posts: 49
Registered:
2021-04-26 00:03:56

Hi Margie,

Sandy has given you the URL for the National Aphasia Assn. support groups. In addition, Northwestern University has quite a bit of information about PPA on their website at: http://www.brain.northwestern.edu/ppa/ Be sure to read their newsletters, available from a link at the bottom of the page. There also appears to be an online PPA support group through yahoo:
http://groups.yahoo.com/group/PPA-support

I hope that you and your husband will find the information and support that you need.

Best, Roberta

>After two yrs. of searching for answers to my
>Husband,s declining speech, we received the
>diagnosis of primary progressive aphasia, a form
>of dementia. He is practically mute now.I realize
>this will progress, but, doesn’t know how or when.
>Is there a support group in Charlotte, NC? I need
>to learn all I can.

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