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Help for 16 yr old
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Replies: 5 - Pages: [1] - Last reply: 2021-09-03 03:13:45 - By: Tabitha
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Rhonda Gasiorowski
(Member)

Posts: 1
Registered:
2021-04-26 00:03:56

Hi! My daughter had 2 strokes from Moyamoya disease when she was 9. She has recovered to the place where she can speak understandably but is “catagorized” by peers. She cannot read or write (has rt hand paresis). She does not “fit” in the school system, in fact, wasn’t in school for 5 months last year. She said “They try make me fit, Mom. I fit nowhere. Just kill me now.” She refuses much of the therapy because she says it makes her feel “stupid.” I’ve been trying for 6 years to find the right reading program, social program, behavior program , “Mom” program,,,(HELP!) , research…(none for children with aphasia). I’m afraid her future will be lost because I’m not doing the right things. THANK YOU for taking the time to read this!

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carole pomilio
(Member)

Posts: 47
Registered:
2021-04-26 00:03:56

Dear Rhonda,
I am so sorry for all of your frustration and pain. It must be very difficult to deal with this each and every day of your life not to mention how difficult it must be on your daughter. I realize that you have a very delicate balancing act to perform so as not to upset your daughter too much but to push her enough to improve. I have no magic answers for you but I do have a couple of suggestions. Your daughter has probably been in therapy for a long time and she has probably had enough of it. Sometimes it is important to pursue the route of continued therapy, but other times, especially when the patient has had enough, it is probably time to stop for awhile and to take a different course. I would try and get her into a support group that has young people in attendance and that focuses on young people’s issues. This would give her a peer group to support her and an avenue where she can practice her communication without judgment from you or from her classmates. On the National Aphasia Assoc. website, there is a section called the young people’s network. Here there are support groups listed by state. Also in this section of the website there is information from parents about their experiences and their children’s experiences with stroke. These stories might be beneficial for you to read. Additionally, there are parents to contact with contact numbers. I have personally met Carol Dow Richards and her son David when they attended a program at the University of Michigan. You may want to contact her for additional information. Also, the school system and the speech pathologist at school should be a resource for you. Remember the school system needs to provide a free and appropriate education for all children no matter what their difficulties are. Also there are schools in different states that provide education for children with communication disorders that you could look into. Another suggestion is to talk to your pediatrician for a full evaluation of your daughter’s emotional status. Maybe he could suggest some outside counseling. And finally, don’t give up; recovery is a very long and slow road. And remember to try and enjoy your time with your daughter, laugh if you can and enjoy whatever successful moments she gives you. Good Luck and let me know if I can be of further assistance.
Carole Pomilio MS., CCC/SLP

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carol dow-richards
(Member)

Posts: 10
Registered:
2021-04-26 00:03:56

I see Carole Pomilio responded as an SLP. She mentioned that you contact me as another mom. I was just browsing the site and saw that. My name is Carol Dow-Richards. My son had a massive stroke with right side issues and aphasia. He was ten at the time. He is now 24. Where do you live? Are you going to the Midwest Aphasia Conference in October? I am going for sure-and am pretty sure that David will be attending. I now live in the Las Vegas area. You can email directly at [email protected] I have published some on aphasia as well as have tried to raise awareness of the disability. It is heartbreaking - especially when our kids are so young. I’d be happy to talk with you on the phone and share some of the things we did. I wish there was a magic wand - unfortunately, there isn’t and it is important (in my mind) to maintain hope & optimism. And, to continue to stimulate their brain for recovery. It seems impossible at times, as we try to do that while dealing with a certain level of grief and depression for most of us who go through it. Email me or call me at 702-982-3075. I’m on Pacific coast time. Hang in there. Carol Dow-Richards, Henderson, NV

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carol dow-richards
(Member)

Posts: 10
Registered:
2021-04-26 00:03:56

I see Carole Pomilio responded as an SLP. She mentioned that you contact me as another mom. I was just browsing the site and saw that. My name is Carol Dow-Richards. My son had a massive stroke with right side issues and aphasia. He was ten at the time. He is now 24. Where do you live? Are you going to the Midwest Aphasia Conference in October? I am going for sure-and am pretty sure that David will be attending. I now live in the Las Vegas area. You can email directly at [email protected] I have published some on aphasia as well as have tried to raise awareness of the disability. It is heartbreaking - especially when our kids are so young. I’d be happy to talk with you on the phone and share some of the things we did. I wish there was a magic wand - unfortunately, there isn’t and it is important (in my mind) to maintain hope & optimism. And, to continue to stimulate their brain for recovery. It seems impossible at times, as we try to do that while dealing with a certain level of grief and depression for most of us who go through it. Email me or call me at 702-982-3075. I’m on Pacific coast time. Hang in there. Carol Dow-Richards, Henderson, NV

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Tabitha
(Member)

Posts: 11
Registered:
2021-04-26 00:03:56

I joined the Aphasia networking last year in August following my 18 year old Son football accident and subsequent diagnoses of Aphasia. Every moring after my prayers, I always check this site to read testimonies and hope of caregivers and survisors, of people who have been affected as much as I and my Son have by Aphasia. Is there a way, that Mother’s who are going through this can form a group where we can inspire each other? We live in Nairobi, Kenya and my username on this site is:NAKURU.

God bless.

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