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Replies: 3 - Pages: [1] - Last reply: 2021-08-13 10:42:13 - By: Debbie
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Debbie
(Member)

Posts: 2
Registered:
2021-04-26 00:03:56

I am 40 yrs. old and have aphasia. I have seen 3 neurologists and spent two 3 day stays in the hospital. I also have numbness in my extremities, a burning ache across my neck, my hands and feet draw up ( muscle spasms), vision is blurry, fatigue is starting to take over now. Do you think its too much to ask for someone to tell me what’s wrong? I am still without a diagnosis, not working, and ready to take my old life back if someone would just help me. Any advise out there?

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Roberta Elman
(Member)

Posts: 49
Registered:
2021-04-26 00:03:56

It sounds as though you have a very complex medical condition that may not be easily identified. My recommendation would be to go to an institution that sees numerous challenging diagnostic cases. Hospitals such as the Mayo Clinic in Rochester, MN or the Cleveland Clinic in Ohio are examples although not the only options. You should get copies made of your entire medical record to bring with you so that medical tests do not need to be repeated.

Wishing you success in finding a diagnosis.

Roberta Elman

>I am 40 yrs. old and have aphasia. I have seen 3
>neurologists and spent two 3 day stays in the
>hospital. I also have numbness in my extremities,
>a burning ache across my neck, my hands and feet
>draw up ( muscle spasms), vision is blurry,
>fatigue is starting to take over now. Do you
>think its too much to ask for someone to tell me
>what’s wrong? I am still without a diagnosis, not
>working, and ready to take my old life back if
>someone would just help me. Any advise out there?

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Debbie
(Member)

Posts: 2
Registered:
2021-04-26 00:03:56

Thank you for your advise Roberta. Barnes in St Louis is my next step altho we are aalready considering Mayo’s. I am unable to get an appointmtne at Barnes until October and my life is on hold until then I guess. I am in speech therapy and my speech is improving although I fear another setback all the time as it has happened b4. I don’t know what to do. Things just keep getting tougher tho as I have been unable to work at this time. I am trying to stay positive. Each day is harder without someone to explain to me what is going on and whatb the future holds. I think it would be much easier if I only new what was happening. Deb

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