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User profile for Julie Stickler
Name: hopeinchrist
Alias: Julie Stickler
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Re: Repetition of Words
Posted at: 2022-01-21 07:46:15
Thank you for your interest in Mom’s recovery. We continue to see improvements and are so grateful. We were told that sometimes going into the second year of recovery there is even more progress and this seems to be true in her case. Knowing that in most cases recovery continues for years is such an encouragement to us and certainly gives us much needed hope.

Concerning the repetition of phrases, she seems to be moving beyond “Is good?” and “Is good about” which is encouraging; however she has replaced those with “I don’t know” and “I don’t really know.” When we bring it to her attention, especially when we know she knows the answer, she is able to correct herself and respond appropriately.

What is so frustrating is that those are her immediate responses seven times out of ten. We encourage her to listen to herself speak, since listening and receiving feedback by hearing what you’re saying is a huge part of the aphasia recovery process. We also encourage her to listen to the question carefully and give herself time to think of her response, rather than responding immediately with one of those phrases. The other thing is remembering that she truly believes what is coming out is what she intended to say. That is why feedback and listening is so important so that they can correct when necessary. We remind her that we, along with others, want to see her succeed in her communication and that we will take the time to be patient while she formulates her response.

I am a huge advocate of patience as it is the most important part (in my opinion) of working with individuals with Aphasia. It is not always easy, Lord knows we know that! And yet, it is a true kindness on our part and always necessary as a means of respect and grace to them.

We seem to move through phases with her recovery and within each phase we experience various levels of success. It is difficult to see those you love so much struggle to “get the words out” especially when prior to their diagnosis they were such eloquent speakers.

Thank you again for your interest in her recovery.

Re: Repetition of Words
Posted at: 2022-01-21 07:46:05
Thank you for your interest in Mom’s recovery. We continue to see improvements and are so grateful. We were told that sometimes going into the second year of recovery there is even more progress and this seems to be true in her case. Knowing that in most cases recovery continues for years is such an encouragement to us and certainly gives us much needed hope.

Concerning the repetition of phrases, she seems to be moving beyond “Is good?” and “Is good about” which is encouraging; however she has replaced those with “I don’t know” and “I don’t really know.” When we bring it to her attention, especially when we know she knows the answer, she is able to correct herself and respond appropriately.

What is so frustrating is that those are her immediate responses seven times out of ten. We encourage her to listen to herself speak, since listening and receiving feedback by hearing what you’re saying is a huge part of the aphasia recovery process. We also encourage her to listen to the question carefully and give herself time to think of her response, rather than responding immediately with one of those phrases. The other thing is remembering that she truly believes what is coming out is what she intended to say. That is why feedback and listening is so important so that they can correct when necessary. We remind her that we, along with others, want to see her succeed in her communication and that we will take the time to be patient while she formulates her response.

I am a huge advocate of patience as it is the most important part (in my opinion) of working with individuals with Aphasia. It is not always easy, Lord knows we know that! And yet, it is a true kindness on our part and always necessary as a means of respect and grace to them.

We seem to move through phases with her recovery and within each phase we experience various levels of success. It is difficult to see those you love so much struggle to “get the words out” especially when prior to their diagnosis they were such eloquent speakers.

Thank you again for your interest in her recovery.

Re: Repetition of Words
Posted at: 2022-03-26 13:25:43
Thank you so much for your response and for your encouragement. Only individuals who love and care for their family members with Aphasia can truly understand the “opportunities for growth” we face.

I know every situation and experience of Aphasia is different, I’m curious how long your husband struggled with the repetition (weeks, months, years)? Did you bring it to his attention or let him work through it on his own? Sometimes it seems she knows she’s doing it other times it seems almost like a habit. I’ve been told she uses the phrases as a filler when she knows what she wants to say but the correct words aren’t coming out. It is almost always her immediate response, unless I cue her to try and respond differently prior to asking a question. I certainly don’t want to frustrate her, I only want to encourage her to convey the thought that’s in her mind and “on the tip of her tongue” verbally.

I thank God for patience and know that He provides so much more than we even know to ask. I want always remember to treat her as kindly and compassionately as I would like to be treated if I were the one with Aphasia. She is such a blessing to so many and we all want to encourage her communication skills in any way we can.

I have posted my request in the Professional and Researchers areas. I’m certain that someone will be responding soon.

Thanks again for sharing your personal experience. It’s helps to know there are others who have “been there, done that” and progressed through it.

Repetition of Words
Posted at: 2022-03-20 08:50:00
I posted this request earlier but haven’t been able to locate it again. So here goes once more…
My mom had a significant stroke in September 2006 and as a result is dealing with the challenges of Aphasia. We are taking a break from Speech therapy for a few weeks (her request) and are involved in an Aphasia group close to our area. Mom’s speech continues to improve and with minimal assistance and much patience she is able to communicate in brief sentences. One of the biggest challenges we’re facing now is the repetition of phrases such as “Is good?” and “Is good about…” These phrases are her automatic response not only to any question asked but also just her response in general, almost as if it’s a habit. We’ve been told these are called “sterotypies” and “perseveration.” We’ve also been told that it will improve over time as she becomes more verbal however it seems to be at least staying the same or possibly getting worse. It is frustrating to her, as she realizes she is doing it, and it’s challenging for us as well, as we want so desperately to assist her in communicating and getting the words out. Is there any advice / suggestions your organization could offer to assist us with this communication challenge? I’ve done massive amounts of internet research attempting to locate some type of helpful information, without success. Any assistance would be so greatly appreciated.
Repetition of Phrases
Posted at: 2022-03-20 08:49:25
I posted this request earlier but haven’t been able to locate it again. So here goes once more…
My mom had a significant stroke in September 2006 and as a result is dealing with the challenges of Aphasia. We are taking a break from Speech therapy for a few weeks (her request) and are involved in an Aphasia group close to our area. Mom’s speech continues to improve and with minimal assistance and much patience she is able to communicate in brief sentences. One of the biggest challenges we’re facing now is the repetition of phrases such as “Is good?” and “Is good about…” These phrases are her automatic response not only to any question asked but also just her response in general, almost as if it’s a habit. We’ve been told these are called “sterotypies” and “perseveration.” We’ve also been told that it will improve over time as she becomes more verbal however it seems to be at least staying the same or possibly getting worse. It is frustrating to her, as she realizes she is doing it, and it’s challenging for us as well, as we want so desperately to assist her in communicating and getting the words out. Is there any advice / suggestions your organization could offer to assist us with this communication challenge? I’ve done massive amounts of internet research attempting to locate some type of helpful information, without success. Any assistance would be so greatly appreciated.
Repetition / Perseveration
Posted at: 2022-03-19 17:56:16
I posted this request earlier but haven’t been able to locate it again. So here goes once more…
My mom had a significant stroke in September 2006 and as a result is dealing with the challenges of Aphasia. We are taking a break from Speech therapy for a few weeks (her request) and are involved in an Aphasia group close to our area. Mom’s speech continues to improve and with minimal assistance and much patience she is able to communicate in brief sentences. One of the biggest challenges we’re facing now is the repetition of phrases such as “Is good?” and “Is good about…” These phrases are her automatic response not only to any question asked but also just her response in general, almost as if it’s a habit. We’ve been told these are called “sterotypies” and “perseveration.” We’ve also been told that it will improve over time as she becomes more verbal however it seems to be at least staying the same or possibly getting worse. It is frustrating to her, as she realizes she is doing it, and it’s challenging for us as well, as we want so desperately to assist her in communicating and getting the words out. Is there any advice / suggestions your organization could offer to assist us with this communication challenge? I’ve done massive amounts of internet research attempting to locate some type of helpful information, without success. Any assistance would be so greatly appreciated.

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