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User profile for Janet L. Whitney
Name: jlwhitney
Alias: Janet L. Whitney
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Re: Primary Progressive Aphasia
Posted at: 2022-01-31 18:23:55
I’m puzzled about the fact that you have been given the diagnosis of PPA but no information about the condition. Who diagnosed PPA? A doctor? A speech pathologist? How is it that you did not get any information at the time of the diagnosis? Of course you could go to the internet and search under “Primary Progressive Aphasia” but I DO NOT recommend that you do that without professional guidance and support. You will get a lot of information, some of it contradictory, and unless you’re a health care professional yourself, a lot of the the information will be “gobbeldygook.” Please find a certified speech pathologist for help with understanding PPA and how you can help your husband.
Re: help?
Posted at: 2022-01-31 17:34:44
But you’ve already done the only important thing: you have a speech therapist coming to see him. I hope you saved a copy of this post to the forum so she/he can read it. I wouldn’t be a responsible professional if I told you what you need or can do. I will tell you that all of your ideas are good ideas. Which of them will help your husband should be the judgement of the professional who evaluates him.
Re: Aphasia survivor needs motivation!
Posted at: 2022-01-18 17:49:20
I’m hoping you can get him to go to the Wisconsin evaluation, even it’s the last thing he does. Although he may already have been around other men with aphasia and/or aphasia groups there’s always the chance that this time it’ll “take.” I love aphasia groups, especially a group of men. They can sometimes get a guy motivated where all the “nagging” from wives and speech pathologists can’t budge a guy.
Re: Aphasia
Posted at: 2022-01-18 17:41:03
I certainly understand your desire to know how much and in what way you might keep improving. You should find a speech pathologist in your area with expertise and experience in adult neurological language disorders. You need a really professional evaluation and advice about language exercises you might use and strategies to work around your specific deficits.
Re: Diagnosing aphasia
Posted at: 2022-01-04 10:59:31
I sincerely doubt it. Remember that “aphasia” is a disorder in language that results from brain damage. This means a documentable stroke or other brain damage such as tumor. But you give no such history. I am going out on a limb here: you say “always” so, given your facility with with reading and written language, it is possible that you had a childhood fluency disorder that went undiagnosed. It might not have seemed important or necessitated treatment. You don’t say your age so it’s unclear what “lose your train of thought” might mean. At any rate, if you are significantly bothered by this expression problem you should consult a local speech pathologist. This would provide an opportunity for someone to analyze your expression and get your complete history. But again, no, this is not aphasia according to what I know of your history.
Re: Expressive Aphasia
Posted at: 2022-01-28 19:55:26
I know about the intensive treatment program and have read some of the research. In general, the more intensive the treatment the better the outcome. However, the are other avenues to aphasia treatment. You need to find a speech pathologist who can evaluate your husband. Yes, of course I am familiar with expressive aphasia but the type of treatment and the projected outcome of treatment is very much dependent on multiple individual factors, each and all of which can be considered by a professional speech pathologist. I would start by checking hospitals in your area for a program and/or clinician. You can ask your husband’s physician(s), especially neurologist. Ask also physical therapists/occupational therapists. You can go to the speech-language pathology professional organization website, asha.org, to locate a professional in your area. Good luck and if I can answer other questions you can e-mail me at [email protected].
Re: question about aphasia in bilingual people
Posted at: 2022-01-31 09:13:04
Sorry about that! I reversed the languages. Again, she has global aphasia in her original language and no impairment in her second, more recently aquired language. It is more typical for the original language to re-emerge, or the most used language and for the second language or more recently acquired, to suffer, at least initially.
,Re: question about aphasia in bilingual people
Posted at: 2022-01-31 08:23:00
There is considerable research on “aphasia in bilinguals.” You could start with an online search. I would have to say that your case, as you present it, with no language deficit in the first language and global aphasia in the second, sounds a bit unusual. Nevertheless, unusual cases abound in every disorder.
Re: the best for my husband
Posted at: 2022-01-30 10:41:05
First, I have to say that without k nowing Scott I can’t give you specifice treatment advice. But I have a few thoughts. You might want to get a different speech-pathologist to give you a “second opinion:” That might entail simply an evaluation and suggestions for different home programs suitable for him. I also wonder if you are close to a college or university with a speech clinic. They sometimes offer a sliding scale when insurance will not pay. You might also look for a TBI or Speech Pathology program in your area that has a group into which your husband would fit. Group treatment programs are helpful for some patients to get motivated to work at home as well. Finally, look online at computer programs that are appropriate for him. Two companies, Bungalow and Parrot, have designed programs for language rehabilitation. If he can work on a computer at all he might find the interactive aspect of it motivating. In the end, your best bet is a speech pathologist with “fresh eyes” to advise you and Scott on your options. If you need to find a speech pathologist go online at http://www.asha.org to find someone in your area..
Re: Primary progressive aphasia
Posted at: 2022-01-24 15:46:41
Wow! I don’t think that I can suggest any additional people to consult. I think you’ve done all the right things in excellent order! I have worked with several people with PPA. Once the evaluations you have pending are done there will probably be many ideas for you to consider. I know things move slowly but try to be patient until all the results are in. I wish you speedy but thorough outcomes.

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