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User profile for Maura Silverman
Name: Maura Silverman
Alias: Maura Silverman
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Posts:48
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Re: Information for my mom
Posted at: 2021-04-18 18:49:57
Thank you for inquiring as to what you can do to help your mom. I know your concern and support will be the proactive assistance that she needs so much. I am not aware of any “kits” done in any language and certainly, the therapy that your mom gets will need to be individualized and completed in her language. You do not mention if she lives here in America or in Italy or elsewhere…this will be important info in securing her the help that she needs…I would be sure there is adequate translation for the assessment and intervention plan.
Progress can seem very slow and it can become quite frustrating for her. (and for her family)… I encourage you to use the resources here, and in your community (look for a support group or email again the state/country and I will assist you in this. Stay positive and most importantly have your mom stay active and involved in the things she loves,…this is key in so many ways. Please feel free to give more info and I’ll see what I can do.
Maura
[email protected]
Re: Information for my mom
Posted at: 2021-04-18 18:44:52
>To Whom It May Concern:
My mom recently suffered
>a stroke and was inflicted with aphasia. She
>has
progressed, but it?s been very slow. She
>speaks only Italian and is hear
ing impaired.
>Do you have any suggestions, are there kits in
>different lan
guages that we can send for and
>give to my mom to aid her in furthering
>her
progress? I wait any reply.

Re: aphasia from fall
Posted at: 2021-04-12 16:48:56
>On 8/31/08, I had a bad fall (long history I can
>give you if needed), resulting in breaking my
>nose and fracturing the orbital area of my left
>eye. Since then, I have had speech problems (slow
>speech, inability to find the word I want to use,
>etc.). I finally did some research this week and
>discovered Braco’s area, which lies directly
>behind the left orbital area. I discussed this
>with my daughter-in-law, who said I must have
>bruised my brain in the Braco’s area. But then my
>husband said the bruise I would have received
>from the fracture would have been on the far side
>of my brain, toward the back, instead of the
>Braco’s area. I don’t know which is correct. I am
>only mildly hindered by this aphasia (if I think
>out a sentence completely before I begin to
>speak, I don’t have a problem; it is only when I
>am speaking spontaneously, and I can usually come
>up with a similar word (note: not necessarily a
>synonym), and can usually “find” the word I
>want within a short period of time. But I don’t
>know if I will recover from this, whether I
>should be seeking treatment (availability slim to
>none where I live), or what. Any advice would be
>appreciated. Thank you, Kate Missett,
>[email protected], Gillette, Wyoming

Katy,
Thank you for your note. I appreciate the concern and your interest in getting some answers re: the fall, subsequent issues, and the options for difficulites that you are having. As you are aware, answering this question would require alot of information on the fall itself and any imaging studies that were completed. And, then, as you must have read, mild concussive syndrome and the like can be difficult to diagnosis and often go without proper evaluation. I would start you on a few suggestions and perhaps you can provide me with more detail. I would recommend that you contact a neuropsychologist for an assessment and to get some more education re: the type of fall you had and the f/u difficulties that you are experiencing. I would also contact your area’s Brain Injury Association. They provide invaluable resources and support.
I’ll check back in tomorrow.
Maura

Re: aphasia-like problem
Posted at: 2021-04-12 16:43:17
>I live in France and my son has been diagnosed
>with something called “les troubles de types
>aphasique” which is what it sounds like -
>troubles as if you have a form of aphasia. He has
>a disconnect between what goes in and what can
>come out: he can read out loud or to himself, but
>he does not understand what he reads very well.
>if you do a dictation exercise, he has trouble -
>in french, words sounds the same, but instead of
>knowing from the context which word it is, my son
>writes more phonetically - rendering a text a bit
>nonsensical. another symptome is joining words
>together. my son has gone through a few years of
>traditional orthophonic work with limited
>results. he has also worked incredibly hard in
>school to render again, limited results. in IQ
>tests he comes out in the top section. he has
>been tested to dyslexia - nothing. les troubles
>de type aphasic is the next guess, but the
>specialist here is convinced. The treatment for
>this diagnosis is to do a variety of very simple
>exercises with a trained orthophonist with the
>aim to make links in his brain - reading simple
>texts syllable by syllable, writing simple texts
>while saying exactly what you are writing at the
>time you are writing, etc. He is 13 sessions into
>his treatment and we are starting to see a bit of
>improvement, but being an american, i have a lot
>more questions than the typical french person it
>seems. do you have any information you can guide
>me to. the french website on this comes when you
>google the discoverer of this condition: gisele
>gelbert. i realize this is a long message, but
>our journey has been long on this too like many
>for many parents i assume. thx.

Thank you so much for your inquiry and for the detail in which you explain your son’s issues. Initially, Let me apologize for the slight delay in response…I have been in the mountains here in NC and could not get access on any consistent basis to check the site. Second, I was wondering if you could provide a few additional pieces of information so I may see what direction I can go in re: to finding you appropriate resources. How old is your son? Has he received a neuropsychological evaluation or the equivalent of this assessment?
I will check this tomorrow and see how I may be able to help you.
Maura

Re: A Teacher’s question for her student
Posted at: 2021-04-04 22:18:42
>Hello,

I teach high school biology. Currently
>I have a student who has nearly no nerve or
>muscle ability to form speech. She lost the
>nerve and muscle control on her right side when
>she was an infant, she is now 16 years old. I
>have learned to recognize certain intonations and
>grunting patterns; as have her friends. She
>earns average grades. She is non-participatory
>in classroom discussions and group interactions
>and who would blame her – only a few can
>understand what she is saying. When I do not
>understand her she writes it down; she has to use
>her left hand so it is hard to read. Typing has
>really helped her communicate at the level of
>cognition that reflects her real self – but it
>takes a very long time.

She has little to no
>use of her right arm and hand; it is pretty much
>held close and the fingers are useless. She
>drags her right leg around but it does flex at
>the hip and hold her weight so she gets around
>with any assistive device.

Here is my
>question: What skills or techniques can I build
>into my classroom experience that will help her
>in life after high school? So far she remains
>cheerful and accepts whatever accommodations are
>made for her. She has been in the same
>community and school since kindergarten, so many
>who are around her just “know” how to help out as
>needed. Whether it is making a microscope slide,
>holding a test tube and removing the cap, typing
>in the computer lab, holding her books….but, as
>she gets older her parents are asking, as am I –
>what will happen to her? What can she “do” in
>college, work and independent living?

There
>must be assistive devices… or a sign language for
>one armed persons…or a device that can speak for
>her, if she types it in…there just has to be
>something out there for such beautiful young
>woman…on her behalf, I am searching for
>hope.

Most sincerely,

A Concerned Teacher

Dear Concerned Teacher,
I am impressed, as I am sure all that read this are…with your compassion and attempts to offer assistance this this young lady. Know that there has been considerable advancements ( and there continues to be daily!!) for individuals who have motor impairments impacting ADL’s, communication, school and career options. You did not mention where you are located, but there are likely resources nearby that do provide evaluations, planning and trial options for individuals re: assistive technology. I would start with the website for the RERC, which is full of nationwide resources and will refer you to centers in your area. We have a local organization here in NC… the NC Assistive Technology Project that is an amazing resource for all of the things you mentioned in your email/question. I encourage you to see if there is a similar organization in your area.
Barriers to communication as it relates to an individuals life participation goals, allows the speech pathologist a great deal of creative opportunities to help you as well.
More soon.
Maura
Maurs Silverman
[email protected]

Re: driver license
Posted at: 2021-04-07 16:46:42
Pola, The area of driving and the responses that the DMV have to aphasia is an area that we are all working on in the area of education and advocacy. The programs in the country that specialize in PPA , and other Frontotemporal Dementias, may be able to offer you some guidelines on this. I would check with Northwestern University (PPA program) and Mayo Clinic. Our program, the Triangle Aphasia Project, in NC is working on the DMV/driving issues as part of our advocacy projects this year, so I would love to hear of your success/experiences. My best, Maura Silverman, MS, CCC/SLP
Re: melodic intonation therapy
Posted at: 2021-04-07 16:41:57
Tirtza, Thanks for getting in touch and I have to send kudos out to you as a very creative way to get SLP feedback on a technique. Unfortunately, this forum is usually answered by the Panel member assigned for the month, so let me give you some other options to expand your survey… you can sign on to the listserv for the ASHA Special Interest group on Neurological Disorders/Adult Language issues, there are also local listservs through your State Speech Language Hearing Association…if you don’t already belong, you can get a student membership and access so many professionals in your state.
MIT, or Melodic Intonation Therapy, is one of the only structured treatment programs that have a breadth of research on efficacy spanning back decades. The resources are great, as they provide critical assessments of the program as it is meant to be administered. What any practicing SLP will tell you, though, is that most individuals can benefit from the program, or parts of it, even without meeting the criterion for candidacy. The use of melody and rhythm have long been known to improve communication between the hemispheres and help establish new pathways for communication. There is actually a newer pool of research that talks about MIT and Music Therapy…again, these professionals may modify the program or use it in collaboration with other strategies that they teach the individual with aphasia in order to maximize the chances for generalization and carryover to real life.
Enjoy learning about this program. Maura
Re: aphasia support groups
Posted at: 2021-04-27 08:42:05
Your sister and her family are also in my thoughts and they are fortunate that you are there to help them. The Pediatric Stroke Network is really a great forum and there are many resources they will be able to offer you in your own community (and theirs if it is different). You may also check with the pediatric speech pathologist working w/her on resources through the school system. Child life specialists at area hospitals also have excellent connections with support systems, materials and family friendly information for them to share.
One of our board members actually has a granddaughter who is also 6 with the same diagnosis. She is doing awesome!! So, keep in touch and I’ll add more info as I speak w/her about ideas or email me at the above address.
My best,
Maura

>My niece(six) was just diagnosed with aphasia due
>to a stroke she had in the womb. I am trying to
>help my sister and her husband find a support
>group to help them through this diagnosis.

Re: identity after aphasia
Posted at: 2021-04-12 12:09:46
Ashley,
Sounds like a great project. I would also suggest posting this to patients / caregivers forums as they are more likely to open those than open questions to researchers. In addition, you could get in touch w/aphasia centers/programs and ask that they distribute the surveys and have them return them to you. I know that in our program (located in NC) http://www.aphasiaproject.org; the clients LOVE participating in projects to help future treatment of aphasia.
Maura

>I am a psychology major at Bates College and I
>am really interested in finding ways to help
>people with aphasia. I am studying the effects
>aphasia has on identity in hopes of finding
>beneficial ways for professionals to aid aphasia
>patients. If you have had aphasia I would really
>appreciate if you could fill out a quick survey
>about your experiences. It is completely
>anonymous… just go
>to

http://abacus.bates.edu/~apalmeri/aphasiaid
>ntitysurvey/

Thank you!

Re: aphasia
Posted at: 2021-04-12 12:06:03
Thank you for getting in touch with aphasiahope…the organization can be such a great resource for individuals experiencing communication difficulties like you are describing.
Anomia, or the difficulty in retrieving words, is classically described as you did…knowing what you want to say but being unable to “get it out”… often anomia results in paraphasic errors, where another word is used instead of the one that you intended. It may have some of the same sounds, belong to a similar category or even be a synonym for the one you wanted to say. Anomia is also a must-have symptom for the clinical diagnosis of “aphasia”. That is to say that if you have aphasia, you will have some level of word finding difficulty or anomia…the contrary, however, is not the case.. you can have anomia without having aphasia. Sometimes it’s a symptom of something else going on…
With a left frontal AVM, you could definitely be experiencing aphasia. In your note you did not indicate if you have had, or plan to have any surgery, … if this has been a new onset or if you have been dealing with it for sometime. I assume that you are being followed by a neurologist who can order a speech / language evaluation. This comprehensive assessment of language functioning will not only be able to put a label to what you are experiencing, but be able to provide you w/some strategies to get better! Remember that with aphasia, there is a possibility of deficits in any/all of the language modalities (reading, writing, listening and speaking), so you could experience the same frustrations in writing or reading that you do in speaking.
I encourage you to seek the evaluation and follow up w/an aphasia support group in your area. You can find this information here (www.aphasiahope.org) and at the National Aphasia Association website (www.aphasia.org). Please feel free to re-email should you have any additional questions for concerns.
Good luck.
Maura

>i have an avm on left frontal lobe also
>compresses the optic nerve. i loose my
>words..nouns i know what i mean but it comes out
>wrong word. i often do not know i have said it
>wrong..most of the time even..is this a form of
>aphasia is there a name for it?

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