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User profile for Sandy Caudell
Name: Sandy Caudell
Alias: Sandy Caudell
Forum Status: Administrator
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Ex Husband had stroke
Posted at: 2021-04-08 09:41:50
My ex husband Mike lives in a nursing home he is eight months out from his second stroke. I believe he wants to talk and has made sounds with me and tries . His facility has not been providing any speech therapy of substance . I terminated the speech therapist yesterday at a care plan meeting because she could not even tell me when she saw him last or tired to help him also at this care plan meeting she refused to discuss her reasons, she was very disappointing in general and was possibly terminated from the Hospital for poor communication skills herself. As I evaluated her demeanor and Mike together, He did not want her to help him any longer by the way he looked at her and me letting me know she has not been truthful in helping him, her repore was harsh for him and myself , she was curt and annoyed to even be ask a general question.I want him to have therapy that is going to benefit him to regain speech. He is on medicare/state medi medi I think, and under the care of the state. He has no speech therapy and has not had any of any significant form in my opinion, I find this difficult for him on top of the courage it takes for him to preserver , which he has taken great strides with his mobility, movement, etc. Now the current facility, Fountain Care on LeVeta Street in Orange Ca, has suggested I bring in private help. I an not in a position to do that financially I am a chronic cancer survivor myself on disability. My question is what are his options now. Who can help and he is just becoming Mobil but its difficult to get him out of the facility for small outings in general. WE want a good speech therapist to be recommended and supplied , he is going for a swallowing test and I was told this would help determine where he was in speech regain from the test, is this true? I am thanking you for you time and attention to this mans ability to talk again.
I am privileged to oversee his care out of genuine concern.
Thank You
Posted at: 2021-10-16 13:21:34
Hi Margie - One great source for support groups is through the National Aphasia Association. If you “cut and paste” this
address it will take you to their page which
lists all support groups for every state. I will
also forward this inquiry on to our Professional for the Month.


Best of Luck to you.


Re: Links
Posted at: 2021-07-26 15:01:33
Hi Mary, thank you for your posting to the Forum on the Aphasia Hope Website. On our site you can click on Research and “join a study” for some information on the studies that are going on. Also good links are http://www.clinicaltrials.gov and http://www.clinicaltrials.com.

To find a support group in your area, a great site is the National Aphasia Association who post support groups by state. You can click on Resources tab of our site and then click on “Support Groups”. Here is their direct link to that page http://www.aphasia.org/aphasia_community

Re: aphasia support groups
Posted at: 2021-04-27 06:59:00
My heart goes out to you and your family during this difficult time. There are two sites I’ll recommend which are http://www.aphasia.org and then click on support groups. That will give you a listing of support groups throughout the United States. Also, go to the Pediatric Stroke Network which is http://www.pediatricstrokenetwork.com and click on support groups which is on the bar at the left bottom. I will also ask our professional for the Month, Maura Silverman to also answer. My prayers are with you.
Re: Tears … Please Advise
Posted at: 2021-04-10 12:15:21
Thank you for your entry into the Forum section of Aphasia Hope Foundation. You have really persevered even when faced with major roadblocks. Don’t give up! Much of your frustration seems to come because people don’t understand aphasia…what it is and its affects. That’s what The Aphasia Hope Foundation is here for…to give information for not only those affected by Aphasia but for all people when dealing with it. We are here to give HOPE, you are not alone and our hopes and prayers are with you.
Re: Repetition of Phrases
Posted at: 2022-03-20 11:17:01
Thank you for re-posting your inquiry. I have notified both Judi Stradinger and our forum professional for the month and there should be replies within a couple of days. I am sorry for you needing to re-post this. We get alot of spam on this site and it might have been deleted with these. Thanks again for your inquiry.
Re: Global Aphasia and Driving
Posted at: 2022-01-04 19:37:58
If you go on the Aphasia Hope website and search “driving” there is an article and information about driving from the Rehabilitation Institute of Chicago which is titled: “Driving after Stroke”. There also is a testimony from John Stradinger who was able to drive post-stroke.

Sandy Caudell
Programs Director
Aphasia Hope Foundation

Re: Recovering Reading After Stroke
Posted at: 2021-04-21 11:58:09
Thank you for your posting on our forum section. There is an article under the Experience Section (under “Resources”) entitled “System for Recovering Reading”…

You can contact Carolyn Von Allman through her email posted there or send her your request via mail to her post office box.

Hope this helps!

Re: St Johns Hospital Oxnard Ca 93030
Posted at: 2022-02-20 12:49:53
Mr. Hawkes, did you have a specific question for our Professional Panel Member?

If so, please contact us again.

Thank you

The Aphasia Hope Foundation

Re: TV Show featuring Aphasia
Posted at: 2021-12-19 10:47:11
Thank you so much for this information, Janice. I will post it on the website so people will see it immediately!

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