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User profile for Sue
Name: SueCarol
Alias: Sue
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Re: Mom’s aphasia getting worse
Posted at: 2021-10-29 19:48:29
Kathy,

Thanks so much for your reply. Yes, we could have someone come in for my mom where she currently is. Did you find the person you have coming to help your mother-in-law through her independent living place, or did you find someone on your own? Could I ask approximately how much it costs? It’s so hard to make decisions when they can’t tell you what they want.

Mom’s aphasia getting worse
Posted at: 2021-10-18 13:21:05
My 83 yr.-old mother suffered a series of mini strokes in 2003, and was diagnosed with primary progressive aphasia. She used to be extremely active sewing, biking, swimming, playing cards, and has many friend. As we saw her condition worsening, my brother and I moved her from AZ to an independent living facility in IL to be near us. Over the years she has completely lost all speech, as well as her smile. She can write very little, and no longer uses email. She has an assistive communication device with pictures and sound, but that seems too difficult for her now as well. We have noticed a turn for the worse over the last few months-she used to write appointments in her calendar, and the last three months the calendar has been blank and she forgets doctor appts. When we come to visit she is lying in bed, shades drawn, in the middle of the day. She seems to be disoriented/confused at times. One day last week she left her room with just her underwear on. This is a lady who always wore matching outfits and hair was just right. When we ask simple questions we usually do not get a response. Before she would shake her head and try to write out what she needed. Looks like she does not change for bed. Sleeps in the same clothes she had on all day. We are at a loss as to what the next step is. We realize she needs someone to help bathe her and possibly take her down for meals, but this will not stop her from leaving her room at any point, walking around not fully dressed. She is the sweetest lady, and never shows any frustration-If only her big blue eyes could talk. Any suggestions would be appreciated. Thank you!
Mom’s aphasia getting worse
Posted at: 2021-10-18 13:19:54
My 83 yr.-old mother suffered a series of mini strokes in 2003, and was diagnosed with primary progressive aphasia. She used to be extremely active sewing, biking, swimming, playing cards, and has many friend. As we saw her condition worsening, my brother and I moved her from AZ to an independent living facility in IL to be near us. Over the years she has completely lost all speech, as well as her smile. She can write very little, and no longer uses email. She has an assistive communication device with pictures and sound, but that seems too difficult for her now as well. We have noticed a turn for the worse over the last few months-she used to write appointments in her calendar, and the last three months the calendar has been blank and she forgets doctor appts. When we come to visit she is lying in bed, shades drawn, in the middle of the day. She seems to be disoriented/confused at times. One day last week she left her room with just her underwear on. This is a lady who always wore matching outfits and hair was just right. When we ask simple questions we usually do not get a response. Before she would shake her head and try to write out what she needed. Looks like she does not change for bed. Sleeps in the same clothes she had on all day. We are at a loss as to what the next step is. We realize she needs someone to help bathe her and possibly take her down for meals, but this will not stop her from leaving her room at any point, walking around not fully dressed. She is the sweetest lady, and never shows any frustration-If only her big blue eyes could talk. Any suggestions would be appreciated. Thank you!

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