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User profile for Anne L. Ver Hoef
Name: AnneVerHoef
Alias: Anne L. Ver Hoef
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Re: PPA vs Broca’s
Posted at: 2021-06-23 11:02:05
Dear Theresa,

One distinction between PPA and Broca’s aphasia would be that PPA is progressive and we would expect someone with a diagnosis of Broca’s aphasia, at least if a result of a CVA, they would show at least some improvement. You did not mention what your mother’s primary symptoms are - if they are word finding and speech sequencing problems - which might be similar in both cases. The MRI would certainly be important in a diagnosis, but so would complete neuropsychological and speech-language evaluations. If the neurologists referred you to these two specialists, they should be doing full evaluations and all the information put together for a diagnosis and treatment plan. You could also see how your mother responds to speech-language therapy as this would provide further useful information in diagnostic and treatment planning. Hopefully you will find professionals who can coordinate with your mother and you to best help her be as functional in her communication as possible. Good luck. Anne

Re: Notropil
Posted at: 2021-06-10 10:49:00
I cannot recommend medications nor supplements, either their use or how to obtain them, as it is really not within my scope of practice. However, a quick Google search revealed multiple possibilities for you to explore. You may also have your mother seen by a medical professional in the US if that is appropriate for her care. Good luck. Anne
Re: Sensory Trigger Method
Posted at: 2021-06-06 09:42:50
>Please could you advise if you have had
>experience with the Sensory Trigger Method
>advocated by http://www.strokefamily.org and whether the
>method and or products are more likely to be
>better or worse than any other aphasia therapy
>program or software package commercially

Many Thanks,
John Davis.

Dear John,

I am not familiar with this product. I looked at the website and tried to find other “independent” evaluations of these materials/methods besides those put out by the people who produce the product. It is always helpful to find information - either supportive or not, from other sources. I did not readily find that type of separate information. As you noted, the materials may not be any better or worse than other computer-based products for practice at home. I do not have advice either for or against the product. I am concerned about some of the claims made about how the process “works” in the brain. That does not mean the materials would not be helpful at some level; they may be just fine for promoting speech-language practice for some people with apraxia or aphasia. So, the upshot is that I am not familiar with the Sensory Trigger Method as described and promoted by strokefamily.org. Anne Ver Hoef

Re: Mom’s subarachnoid hemmorhage
Posted at: 2021-07-23 13:08:28
Dear Sherry,

I did some more checking with a few colleagues — none had heard of nor tried the strokefamily program. Again, this is not a negative response, just an “I don’t know.” The therapist working with your mother might try using some similar materials and setting up a program for your family to follow. The focus and intensity of practice with various forms of communication will likely be quite helpful.

Good luck,

Re: Constraint-Induced Aphasia Therapy
Posted at: 2021-07-23 13:01:49
Dear Claudia,

Oh, dear, that part of the country is mostly unfamiliar territory for me as I live and work in Alaska (and know more people in the NW part of the country). You might try contacting Lynn Maher, Ph.D. ([email protected]) who has done quite a bit of research in this area. She is based in Texas but may know of someone with experience in CILT in the northeast. Good luck.

Re: Mom’s subarachnoid hemmorhage
Posted at: 2021-07-07 09:32:50
Dear Sherry,

I am not personally familiar with the program from Stroke Family. I did go to the website and read a little about it. I don’t really have any negative thoughts about it but I am not sure they can really promise or guarantee results, either. One thing to keep in mind is that any time you work with someone more intensively, you will probably get more results. If your mother is only receiving a few hours of speech-language therapy at present, and you and your family start working with her more intensively (with these materials or others), she will likely make more improvements. This is a good thing!

I will ask some other professionals if they have heard of this program — hopefully get some more feedback for you. Anne

Re: could there be an underlying problem
Posted at: 2021-07-07 09:25:47
Hmmmm…..there could be a problem but it could also be a normal fluctuation of life. Are there other things that may be going on for your husband such as changes at work or in other aspects of his life? Sometimes people make more speaking mistakes when they are slightly distracted, often by their own thoughts.

If you truly see a progression or worsening of speech and language problems, I suggest you talk with your husband about your observations and see what he thinks. You might consider then consulting with a neurologist. You would want to explore the medical-physiological causes for these changes. Good luck. Anne

Re: What kind of aphasia is it?
Posted at: 2021-07-06 09:37:48
I applaud your doing the research on various labels and categories in the topic of aphasia. It can be quite convoluted and complicated. While there is a general consensus on the descriptions in the types of aphasia, there is also variability even within these groups.

I am not very clear from your description about the nature of the person’s speech and language. Even with a fairly lengthy description, I would feel uncomfortable trying to give an exact label or diagnosis without seeing and evaluating the person. Has the person you described been evaluated by several types of medical professionals, including a speech-language pathologist? I am thinking that evaluations by neurology, neuropsychology and speech-language pathology might be appropriate.

Re: husband aphasia
Posted at: 2021-07-06 09:27:39
Although it may feel as though a lot of time has gone by, in terms of recovery from a major bleed - brain insult, your husband is still in the the prime time of recovery and rehabilitation. No one can exactly predict when your husband will recover or how much of his previous skills he will recover. It is important to look at his progress and to keep encouraging working very hard at rehabilitation.

I was a little unclear if the four days a week included multiple visits with speech-language pathology or that was divided among various therapies. I am hoping your husband is still receiving multiple speech-language treatments weekly (often the limits are imposed by insurance carriers, not by medical professionals). It is important to do as much follow-up from the professionals as you can as part of the “home program.” It sounds like your husband is quite familiar with computers; is he doing some home program activities on the computer? This would be something to explore with the speech-language pathologist.

It is critical that your family keep a positive, forward-looking attitude — again, focus on the progress your husband has made and encourage more of that! Celebrate the little victories and advances. Maximize the rehabilitation that is offered through professional services, and available in various support groups, community agencies and home program. I wish your husband and your family well. Anne

Re: Questions
Posted at: 2021-06-28 09:46:53
Dear MaryAnn,

In almost all cases people do make improvements in their speech and language skills (aphasia) following a stroke. These improvements can be enhanced through speech-language therapy with a qualified and skilled speech-language pathologist. That professional should also provide you with information regarding aphasia; the specific types of problems your mother is experiencing and how to best address them. Each person is unique, so the treatment and course of recovery is also individualized. I wish your mother a speedy recovery to the best level she can obtain. This will take awhile - many months and perhaps years. It helps to be prepared for this extended rehabilitation and recovery! Anne

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